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Replies to "Hello @rhamrin. "This hasn't been an easy ride, but endurable," is a realistic and positive way..."
My first 2 Chem treatments are going ok! I found out on my blood tests from last Friday 14th of Nov 19 that my:
Kappa Light Chain, Free Serum is now 8.00 (normal is .33-1.94)
Lambda Light Chain, Free Serum is 1.32 (normal is .57-2.63)
Kappa/Lambda Free Light Chain Radio is 6.06 (normal is 0.26-1.65)
Should I worry about this now, or wait until I'm seen at Mayo next Monday the 25th of Nov 19?
Please advise very worried.
Hi Justin. I am doing well overall. I struggle with fatigue, brain fog, and other side effects of the maintenance chemo regimen I'm on. But I have a lot to be grateful for. I'm able to survive on long term disability, along with SSDI, and feel blessed to have the time to recover. I had an auto transplant, that is easier than the allo, since I used my own stem cells and avoid graft versus host. I did, however, have a very difficult time with my transplant and am glad to be past it. My half-sister has a friend whose husband has hemophilia. I've heard it can be quite difficult as well. As far as my way of looking at cancer, it's a long story! But I do write a blog called Incurable Blessings, which I started about two months after my transplant. Writing has been cathartic. It helps me process all that has happened and allows me to connect with others — one of the the biggest blessings of having cancer.