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packgb19 (@packgb19)

Amyloidosis

Blood Cancers & Disorders | Last Active: Nov 18, 2019 | Replies (12)

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@rhamrin

Hi Patrick. I was diagnosed with stage 2 mm last year. I had my transplant late October and left Mayo right before Thanksgiving. I hope chemo goes well for you with minimal side effects. This hasn’t been an easy ride but endurable. Prayers to you. And hugs.

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Replies to "Hi Patrick. I was diagnosed with stage 2 mm last year. I had my transplant late..."

Hello @rhamrin. "This hasn't been an easy ride, but endurable," is a realistic and positive way of talking about dealing with a rare disorder or cancer. While I don't have a blood cancer, I do have a rare blood disorder (hemophilia) that can cause issues that are difficult to deal with. I'll remember those words, not easy, but endurable. If you don't mind me asking, how are you doing post-transplant? Was it autologous or allogeneic? I have heard one is more difficult than the other.

@packgb19, you mentioned you were starting chemo. If you are comfortable sharing, how did your first treatment go?