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My bronchiectasis specialist is leaving!
MAC & Bronchiectasis | Last Active: Nov 29, 2019 | Replies (25)Comment receiving replies
windwalker yes, I couldn't do the 4-week on/off so they put me on 2 weeks on/off. More than that gives me serious breathing problems. But I plan to stay with it a while longer. I started in March and can see no improvement in either MAC or pseudomonas. Perhaps I need more time. Yes, I do albuterol followed by saline (and then toby when I'm on it). So wish I could see improvement. I also just finished 14 days of cipro 1000 mg daily...… don't see any results from that either. Kind of discouraged, Terri. Jan
Replies to "windwalker yes, I couldn't do the 4-week on/off so they put me on 2 weeks on/off...."
Hi Aunt Nanny...when I tried Tobi for my psedo, it wasn’t as effective as the Colistin...I take 150mg every other month....knocks it back to very lite....after 4 weeks or so back to medium...go on Colistin again for 4 weeks, and so goes my cycle...have been doing this for a few months...feel great💕
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@auntnanny Hello Jan. I apologize for not getting back to you sooner. I have been dog/house sitting for three families consecutively for the last three weeks, and been out of my routine. I am sorry that you are feeling discouraged. This is a fickle infection to battle. Most of the treatment plans end up being a three year thing before people test negative. So, hang in there, and if need be; try diff meds up the road. I know you have been at this battle a long while already & it gets old. You have to go on, and also do self mental checks. Give yourself wellness pep talks. Tell that mac you will NOT have it anymore! Sending you cyber hugs.