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pjkb1health (@pjkb1health)

PBC Symptoms and dealing with extreme fatigue

Autoimmune Diseases | Last Active: Feb 17, 2020 | Replies (12)

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@rosemarya

@pjkb1health, Welcome. I am a liver/kidney recipient. I experienced severe itching and fatigue before my transplant. They are among the common symptoms that almost every liver patient experiences. Here is a discussion> Groups>Transplants>Liver disease itching where you can meet others who have shared about itching. You are not alone.
https://connect.mayoclinic.org/discussion/liver-disease-itching/
Are you being treated by a gastroenterologist (GI)? What help, if any, has your doctor offered?

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Replies to "@pjkb1health, Welcome. I am a liver/kidney recipient. I experienced severe itching and fatigue before my transplant...."

I have PBC. The fatigue is severe and changed my life. I am managing the itching. I see a hepatologist who checks my liver function blood tests every 6 months or so. I have responded well to Ursodiol which I take daily. However My life is not normal,

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