Has anyone had the Opdivo (nivolumab) / Yervoy (ipilimumab) protocol?

Posted by max326 @max326, Oct 31, 2019

Hello, has anyone been on this protocol? If so did it work for you and what were the side effects? I was DX in June with stage IV NSCLC. Treatment was standard of care, Carbo-Alitma-Keytruda. The lung responded, yet the liver mets progressed and increased, as did the brain mets. The Opdivo/Yervoy has been given to me as an option. Other options include chemo and clinical trails. Thank you for any feedback.

Interested in more discussions like this? Go to the Lung Cancer Support Group.

Colleen Young, Connect Director | @colleenyoung | Oct 31, 2019

Max, I'd like to bring @maria146 @ginpene05 and @keeks into this discussion. They or someone they care about has experience with Opdivo (nivolumab) / Yervoy (ipilimumab) combination treatment and may be able to share experiences with you.

Are you leaning towards the Opdivo/Yervoy treatment or opting for a clinical trial?

max326 | @max326 | Nov 1, 2019

At this point I do not know which treatment plan I am going to go with. I have to hear the pros and cons of each. Any thoughts on clinical trials? Thanks

Colleen Young, Connect Director | @colleenyoung | Nov 1, 2019

@seaspray, did you have Opdivo/Yervoy? What was your experience?

Colleen Young, Connect Director | @colleenyoung | Nov 1, 2019

In reply to @max326 "At this point I do not know which treatment plan I am going to go with...." + (show)

@max326, You may be interested in reading this discussion on Connect, especially @burrkay's post about his wife experience on a clinical trial for stage IV NSCLC
- I took part in a clinical trial. Have you? https://connect.mayoclinic.org/discussion/join-a-study-at-the-nih/?pg=1#comment-303762

Which clinical trial was your oncologist suggesting?

seaspray | @seaspray | Nov 1, 2019

In reply to @colleenyoung "@seaspray, did you have Opdivo/Yervoy? What was your experience?" + (show)

Colleen - No, I have not had the combo of Opdivo/Yervoy. I was on Opdivo for over 3 1/2 years until I had progression and switched to another immunotherapy called Tecentriq.

max326 | @max326 | Nov 2, 2019

Thank you for your replies. I have look at the links both of you provided. Sure is a lot of information to process. The one clinical trial I have been submitted to is LungMap, waiting to hear if I qualify. We are going to MD Anderson on Wednesday. I am being treated at Northwestern in Chicago. The Opdivo/Yervoy can scare me a bit because of the possible side effects. When I have my options it will be decision time. Thank you again. And to anyone, I welcome any feedback on this combo or your experience with clinical trails.

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