Hello @justwrite and welcome to Mayo Connect. I'm glad that you posted your concerns here on Connect. As you may know, Mayo Connect cannot offer diagnostic help. We are patients, like yourself, who can share our own experiences and we can offer you support and encouragement during the process of getting a diagnosis from your medical team.

You do not mention your age or any other health problems you have. However, I'm wondering if you have seen an endocrinologist. These are great doctors who have a tremendous knowledge of the body system and can often put together the puzzle pieces of difficult to diagnose problems. Have you seen an endocrinologist yet?

Have any other family members had problems such as this?

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