Looking for advice for lupus pain and swelling management

Posted by sirgalahad @sirgalahad, Oct 9, 2019

my friend Kim has just had a blood test and has very titre response to HEP 2 ANA at 1.8 and has severe swelling in arms and legs for possible lupus . she has issues with NSAIDS and can people please suggest pain management and foods or natural stuff and how to lower swelling and stop the nerves firing off and electrical shock

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Ginger, Volunteer Mentor | @gingerw | Oct 10, 2019

@sirgalahad So sorry to hear about your friend. Cease or severely reduce sodium intake. Exercise to keep muscles with blood flow and reduce swelling, besides the movement will actually make you feel better. Coffee can act as a natural diuretic. Homeopathic remedies for aches and pains can include belladonna, which I have used before. Overall caution as to diet, not overdoing salt/sugar/protein all seem to help me. Having a circle of friends to support you is so important, as she knows by having you!
I hope she feels better soon, and that this helps a little.
Ginger

Becky, Volunteer Mentor | @becsbuddy | Oct 10, 2019

@sirgalahad Good morning. This must be so upsetting for your friend, but I’m glad you are there to support her. Has she thought about making an appointment with a dietician at the local hospital? Also, what has the doctor said re: what could be going on and how it might be treated? Let us know, please. Becky

sirgalahad | @sirgalahad | Oct 10, 2019

In reply to @gingerw "@sirgalahad So sorry to hear about your friend. Cease or severely reduce sodium intake. Exercise to..." + (show)

our paths cross in different groups bear hugs

sirgalahad | @sirgalahad | Oct 10, 2019

In reply to @becsbuddy "@sirgalahad Good morning. This must be so upsetting for your friend, but I’m glad you are..." + (show)

she has to wait till dec19th to see rheumatologistat least she listened to me via Kim to have a full blood test of endocrine, immune, biochem and I suggested hormonal screening and I asked her to get a baseline of lft ,kft , pancreas, adrenal gland and thyroid and parathyroid. American doctors occasionally to Australian pathologists.

sirgalahad | @sirgalahad | Oct 10, 2019

In reply to @sirgalahad "she has to wait till dec19th to see rheumatologistat least she listened to me via Kim..." + (show)

can anyone advise me to advise her about good pain management as her doctor is next to useless and has to wait 9 weeks to see a specialist

Ginger, Volunteer Mentor | @gingerw | Oct 11, 2019

In reply to @sirgalahad "can anyone advise me to advise her about good pain management as her doctor is next..." + (show)

@sirgalahad Cold compress or heating pad, whichever make her feel better. Acetominaphen [Tylenol] if she can tolerate it. Gentle massage. Warm bath with Epsom salts. Perhaps some arnica montana, which is homeopathic and I have used it for bruising and muscle soreness before. The trick seems to be trying different things to find what works best. I was diagnosed with SLE in 1988, and have had a range of trials to see what works best. Gentle cyber hugs to you and your friend,
Ginger

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