Where to turn next

Posted by maui6698 @maui6698, Sep 18, 2019

Hello everyone, I really need some advice or direction and prayers. At this point I’m not sure where to go or what dr. to see next. All I’m certain of is that something isn’t right and that I don’t feel well. A little back story I’ve been feeling unwell really since February maybe before that. But its hard to determine as I was recovering from a broken kneecap. I am hardly able to function at this point. It’s a struggle to make it to work, when I get home all I want to do is go to bed. Im the most exhausted I’ve ever been in my entire life. I just turned 41 last month and I feel like im wasting precious time with my family. I was recently diagnosed by my rheumatologist that I have spondyloarthropathy and trigeminal neuralgia. But these symptoms that I’m having aren’t addressed by those two diagnoses. My gp is useless. I have intense night sweats, I’m cold all day (when I live in Texas) I’m losing weight, not hungry I do not eat breakfast hardly have lunch and will eat a bit of dinner with my family. My skin looks funky, its pale, I can see all of my veins now even on my eyelids. I’m dizzy most of the time. Bruise easily, and have some odd spots that appear out of nowhere. Ive had a cough since august I cant get rid of. These are just a few of my daily issues. I’ve been to my gp, to a gi dr and now to the rheumatologist. I just know in my gut something is off I can tell, but I honestly don’t know where to turn next.

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@hopeful33250

Hello @maui6698

When you see an endocrinologist (or another specialist) you might find the following post helpful. It explains how to approach a new specialist. The information to bring with you as well as the information to discuss with the doctor. It would be advisable to bring with you a list of your symptoms, etc. Here is the link to this post,

https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/

Jump to this post

thank you this will be so helpful! i will use this forsure.

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Perhaps this has already been considered, but has your B12 level been checked?

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Good question. Yes, Vitamin D checked !

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@maui6698 Hello, I’ve been wondering if you were able to see an endocrinologist as you had hoped? What have you been able to find out? I certainly hope you get some answers soon!

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