Hi, @maui6698 and welcome to Connect. I know the frustration of having symptoms and not getting a diagnosis. I had multiple, seemingly unrelated symptoms - episodes of confusion and irrational behavior, shaky hands, being cold all of the time, fatigue, and declining platelet counts, fluid retention in my feet, but it took almost a year and a half for a neurologist to add them up! I was sent to a neurologist because they thought the confusion episodes were neurological. He was the doctor who suggested liver problems and he was right. I had non-alcoholic cirrhosis from fatty liver and eventually had a liver transplant.

Sometimes it takes an extremely talented diagnostician to add everything up. Have you gone to a major medical center? You are more apt to find help there simply because they see so much more. I know I will never again wait before heading to Boston (I’m in southern NH) if a diagnosis is not made in a very reasonable amount of time here. I think the doctors here were not putting all of my symptoms together. Have you ever seen the TV show “House”? He was an exceptional diagnostician. When I went so long with no diagnosis I was asking where House was when I needed him!
JK

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