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jl1 (@jl1)

Waiting on diagnosis

Brain & Nervous System | Last Active: Nov 3, 2020 | Replies (30)

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@wbuawxman

Hi Jl1 …

This DOES sound frustrating, and terribly disruptive to your life. Not being able to read would be a huge loss for me as well. I'm sorry you're experiencing this mess!

That being said, this sounds familiar. Having a potentially critical event that all this can be related to should make this easier to figure out. Other neurological problems without a specific causal event are often hard to diagnose. In your case, there at least one clue I think, in what you've written here. I'll start for now with one question:

Have you been diagnosed previous to your car accident with Sjogren's syndrome?

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Replies to "Hi Jl1 ... This DOES sound frustrating, and terribly disruptive to your life. Not being able..."

No i think the car accident exacerbated my symptoms specifically my loss of balance and confusionn. Every sympyom had been explained and diagnosed as something else. The stress of my mom dying, made all of my symptoms much worseto where i am not able to work or drive.

I should also mention that the biopsies were lesions on my spine and a 3cm mass between my esiphagus and trachea.

Mu neurogist and incologist are leaning to sarcoidosis.