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brie (@brie)

Ankylosing spondylitis, losing feeling in my legs

Spine Health | Last Active: Nov 4, 2019 | Replies (9)

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@johnbishop

Hello @brie, Welcome to Connect. There is another existing discussion for ankylosing spondylitis:
> Groups > Spine Health > ankylosing spondylitis
https://connect.mayoclinic.org/discussion/ankylosing-spondylitis/

It sounds like you are doing an excellent job advocating for your health and learning as much as you can to find out what helps. I'm sure it can be overwhelming trying to figure out what will help. Are you able to share any steps you've taken so far that help?

I did find an article that may be provide some helpful information.

Osteoporosis Management in Ankylosing Spondylitis
https://link.springer.com/article/10.1007/s40674-016-0055-6

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Replies to "Hello @brie, Welcome to Connect. There is another existing discussion for ankylosing spondylitis: > Groups >..."

Hello John, thank you for the very interesting and informative articles. I have been learning as I go with this illness. One of the main steps I've taken is to learn how to manage my stress levels as stress heightens the pain and inflammation and can actually exacerbate a flare up. Through meditation and mindfulness I keep working at keeping stress at bay. Also, the draining fatigue that comes with the pain and inflammation is like a curtain that falls over the stage. When it hits, there is no keeping my eyes open. So I've learned to let myself sleep when this happens. It can be such an inconvenience to life in general, but I've learned not to fight it. It is a necessity.