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Neuropathy | Last Active: Sep 18, 2019 | Replies (34)

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@artscaping

@johnbishop, So how would the doppelgänger handle “idiopathic”? It seems like we are fighting the same situation. The symptoms of Small Fiber Neuropathy (SFN) can be confirmed with the skin punch test. Yet, what does that mean in the grand picture if there is no determination of how you get SFN which could then lead to how to prevent it? Chris

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Replies to "@johnbishop, So how would the doppelgänger handle “idiopathic”? It seems like we are fighting the same..."

@artscaping, I'm less concerned than a lot of members with trying to figure out how I got SFPN. More than likely it's hereditary since I have a first cousin who has it and also my late sister had it although she had diabetes too which may have been her cause. One of my earlier primary care docs told me I was pre-diabetic which I'm not buying since my A1C has never been that much out of line. I actually think mine was from years of taking a statin for high blood pressure. I was in a Mayo Clinic heart study in my 50s where they identified the cause of my high blood pressure as hypertension and then changed the meds I was taking to spironolactone and hydracholorthyazide. By that time I was already have numb toes. I'm more worried about progression and I feel like the supplements I take have slowed or stopped the progression in the past 3 years.

Actually my big hope for others with SFN is some kind of stem cell therapy when it gets advanced enough to have clinical trials and there are positive outcomes. Part of me thinks that diet plays a large part in the disease with all of the GMO products and chemicals used in producing the foods we eat. Don't be surprised if I make an appointment early next year with your MFR therapist to see if she is able to help me with my lower back and problems walking very far or much.