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oakbourne (@oakbourne)

Bronchiolitis Obliterans with Organizing Pneumonia (BOOP)

Lung Health | Last Active: Nov 25, 2020 | Replies (14)

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@kp5450121

Who told you what gave you BOOP? I JUST found out that I have it and my lungs are the worst and I can not even walk to bathroom without air and about to die and on 20 leaders of air. I am requiring a lot of oxygen. I had this in 2016 but they said it was diagnosed wrong.I feel the lung transplant is the only way to go and its a lot but I am willing to work to breath again. I can't even go outside on porch

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Replies to "Who told you what gave you BOOP? I JUST found out that I have it and..."

Hi, I don't know what to say. Have you been to a pulmonologist that said you have Boop Pneumonia? My Boop was confirmed by a lung biopsy. I was sick, having a hard time breathing and a deep dry cough. I think there are two kinds of Boop. Right now they don't know what causes Boop. I have inflammation in my Gut and I think since our Gut and lung tissue is the same, there is a connection. You need to be on medication. I think there is the fast dangerous kind of Boop, but mine came on slowly and breathing was difficult. Since you've had it since 2016, you may have the kind I had. First, you need a diagnosis. Please contact me. Dorothy

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