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What helps with post liver transplant fatigue?
Transplants | Last Active: Oct 4, 2022 | Replies (73)Comment receiving replies
At my last appointment last summer, he said that if I would be on prednisone (5 mg or more) for more that 3 mos, it’s suggested that I take an rx for bone health. After my 1 yr check, and having a Dexa scan, I messaged him asking if he could check my scan and let me know if he thought I should be taking one of the meds for bones. He replied saying that after reviewing the scan etc. he could/would recommend it. It’s probably a good idea to talk to your endocrinologist about it. They are the ones who treat it. Prior to my transplant, he was the one who ordered my Dexa scans. I also see him for thyroid issues and previously parathyroid issues.
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@cmael, @contentandwell - I have been getting bone density scans since I was first diagnosed with liver disease. Knowing that liver disease does affect bones, my doctors wanted to establish a baseline for me. Since my transplant, part of my routine aftercare has been routine bone density scans (I think every 2 years) and they show some improvement from my serious decline at time of my severe stage of liver failure. I am at the osteoporosis stage, and I am encouraged at each annual post transplant check-up to keep on doing weight bearing exercises and to get enough calcium in my diet, which I supplement with Calcium Citrate/Vitamin D (approved by my transplant team). So far, I'm holding steady. I have my bone density scans done at Mayo when I am there as part of my check-up.
I am curiously looking toward what might be down the road (or trail since I like to hike) so I found this information to be helpful. I want to share it here. It covers a wide range information, even role of endocrinologist and diagnisis and treatment. (medication, exercise, diet).
https://www.mayoclinic.org/diseases-conditions/osteoporosis/symptoms-causes/syc-20351968
It also tells about other conditions that can increase the risk of osteoporosis. And questions for your doctor.
I don't see my team for another year. Let me know what you find out.
@cmael, Come back! I just added the link!