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abrunslori (@abrunslori)

Immunotactoid glomerulonephritis

Autoimmune Diseases | Last Active: Aug 17, 2019 | Replies (11)

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@abrunslori

Hi Ginger. Sorry to hear of your disease. I to follow a low protein low potassium low phosphorus no red meats processed foods dairy grains salt etc. it seems like I've carried this disease for 10 years however was just diagnosed a year ago after kidney biopsy. As I message John I'm taking a more holistic approach with some alternative medicine and some herbalism. Hopefully that'll help me to sustain a longer. Of time until kidney failure comes knocking

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Replies to "Hi Ginger. Sorry to hear of your disease. I to follow a low protein low potassium..."

@abrunslori You're on the right track! As a patient, there is a lot we can do to slow the progression of this type kidney issue. Be gentle to yourself, and please continue to post as you see fit. When I medically retired in late 2015, my GFR was 39. My last set of labs in June 2019 show GFR at 33, a lot due to the reduction of stress in my life, and watching my diet closely.
Ginger

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