← Return to Water at freshwater lake

Discussion
kathyhg (@kathyhg)

Water at freshwater lake

MAC & Bronchiectasis | Last Active: Oct 8, 2019 | Replies (48)

Comment receiving replies
@windwalker

@sandykayhud Hi. I searched and searched the internet to try to find the answer to your question. I have not come across anything that says that Arikayce can cause you to lose your voice permanently. It is a fairly newly released drug, so it has a short history. I had a similar thing happen to me when I first started on inhaled tobramycin. I am now very used to it and it doesn't make me hoarse any longer. It took me several weeks to get beyond the hoarse stage. Are you continueing on with it?

Jump to this post


Replies to "@sandykayhud Hi. I searched and searched the internet to try to find the answer to your..."

Thanks for the encouraging reply. My pulmonary dr has taken me off Arikayce at this point. My voice has been completely gone now for 10 days so he has no plans to put me back on at this point. He says to give it time so I am trying to patiently wait to see what it does. I am not able to speak and can only barely whisper. He is also trying to get me into a MAC specialist at Birmingham Ala. Maybe he has more answers.

  Request Appointment