Asthma, COPD, CVID and MAC

Posted by bennb023 @bennb023, Jul 25, 2019

I am 63 yrs old and have been dealing with asthma, copd, Mac, and CVID. I do pretty well and am still working full time. Any others have MAC?

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@joelars- Good morning. I have not heard of this type of test. My pharmacy and PCP keep track of what vaccinations I need. Perhaps start a small journal of shots you need? Here is an email from AARP about just this. https://www.aarp.org/health/drugs-supplements/info-2019/immunization-quiz-shots-vaccines.html

What's the best way for you to keep track of what you have or need for the future?

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I have MAC and CVID. I take hizentra (infuse IgG scig) and nebulize saline with an aerobika for my lungs

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@joelars

@merpreb had my allergy tests. I didn't react to any allergens. Ironic, I'm so healthy, except I ruined my lungs. They gave me one spirometer test- blowing out as hard as you can. They use a visual, a tree with leaves with the goal to blow off the leaves. I was able to do it easily, so it must of been easy.
One productive thing came from the exam: the doc said he wasn't surprised I got pneumonia 2x because the vaccine I got only protects against 1 strain. He sent me for a blood test where they test my immune systems reaction to various pneumonia strains. He claims that will tell them the type of vaccine to use when I hit 65 (3 more months), and that vaccine will be more likely to succeed. Have you, or anyone in th group, heard of that type of blood test.?

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As part of studying my immune system, I had tests done to see if I had developed immune (titer) from pneumonia vax.. maybe this is the same. I reacted differently to Polyscachhride vax vcompared to the other.

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