← Return to New pt appt in Minn soon for meningioma (or 2?) and Rathke Cleft Cyst

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@cacoon6

Thank you so much for your replies. I keep setting my expectations low as each neuro I have met with say that my headaches are not a symptom of the meniangioma or cyst/adenoma. I don't want to just take meds, I want to get to the cause. I work a full-time job and have 4 kids from 17 to 8. I just am so tired and scared. Thanks again…I need to book my flight and hotel.

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Replies to "Thank you so much for your replies. I keep setting my expectations low as each neuro..."

Hi @cacoon6, I'm tagging @IndianaScott on this discussion. Like you, he and his wife traveled from Indiana to Mayo in Minnesota to be treated for brain tumor. He may have some tips and thoughts for you.

You may also be interested in these discussions:
– Multiple meningioma brain tumors https://connect.mayoclinic.org/discussion/brain-tumors/
– Watching a Meningioma Brain Tumor https://connect.mayoclinic.org/discussion/watching-a-meningioma-brain-tumor/
– Mayo Appointments: Brain Tumor 48-hour Access Program https://connect.mayoclinic.org/discussion/mayo-appointments/
– Gamma Knife Radio Surgery for Meningioma https://connect.mayoclinic.org/discussion/gamma-knife-radio-surgery-for-meningioma/

Cacoon, do you know about the Concierge Services that Mayo Clinic has? It is a free service that you can use prior and during your visit to help you find services, such as accommodations, transportation and things to do. You can contact them by email, phone, chat or in person during business hours:

* Phone: 507-538-8438
* Live Chat: https://www.mayoclinic.org/patient-visitor-guide
* Email: concierge@mayo.edu
* Web form: https://www.mayoclinic.org/patient-visitor-guide/minnesota/becoming-a-patient/concierge-travel-services

They can also talk to you about how to make reservations when you don't know how long you'll be there.