About ready to scream, been bad month

Posted by reibur1951 @reibur1951, Jul 5, 2019

P let the lavender piton Siamese out on the 2nd we both walked the yard i did till could do no more Monday1st i woke up with shoulder hurting and it got where could barely move it event o get dress was a chore - any way to hunt the kitten he decided tiller had to be started in the tall gras wrapped the tines up good with the grass and the cable from the satellite dish to bedroom tv argued with direct-tv about what was wrong they would not accept that i knew a well bent if not broken cable repairman came out on Thursday 3rd and decided to screw it to the side of the mobile home - and right through the electrical wiring for the offset had to call P's brother-in-law in for re-enforcement as I wanted it repaired properly right - as we had to be in Indy on the 5th I was going to cancel if not repaired right do not need an electrical fire and lose what little i got and my genealogy records trailer would be no loss really its a piece of s--t 1978 falling apart would be faster excuse to get out of here to better accommodations but not way to do it .... supervised he fixed it properly... hauled a load of scrap off and found someone to help cut up heavier stuff so better $$ out of it - got one hugh homemade fork lift gone that has sit out in front yard since 2016.... Friday 28th was bad i sat in hare and semi cried all day think the whole year month hit been a year since RUss died (June 28th)... Sat 29th went to town and the van/car vibrate more than usual and very different so called P's brother-in-law to test drive he did not have to - - passer side tires had flat spots - - drivers side major problem the wire cord was showing out of tire and it had busted through on the inside
could only see by taking pic with camera it was frayed splintered and looked like a "bad hair day" cancelled his ct's scans out for Monday made them on the 3rd and then went back today - good news/bad news by ct's the right Supraclavicular lymph node(s) are slowly shrinking don't go back to radiologist tll 17th dec - left axillary lymph node in armpit has started to swell & their is one or two around the esophagus that is enlarged - he had he labs/dr/ infusion today he still wants to keep him on the Prembo KEYTRUDA® (pembrolizumab) | Anti–PD-1 Immunotherapy as everything else is looking good and main tumor too - ct's in 6 to 9 weeks to see what is goign on not suree what plans is if still growing 🙁 The survey done - the variance passed and the appraisals done - just waiting to get into lawyer to deed off the 5a to the sister to see if there is a nice attitude and more help but i doubt both work - and she wanted the full 69a.... been a wet farm season a lot of ground not planted - the 69 is the 40 thats on sale hold did not get planted but its cash rent when get the 5a deed off I will know what i got left have been scouting out new/used newer model trucks too and start on my house in culver its 114+ i think its beeter try to make a part of it livable rather than buy more property but cross that bridge when get there or find place to rent but will have to where we can take the doxie and cat.... P's birthday Sunday will be 58... Sep/Oct will be 3 years when it all started with him seems like yeasterday... I am hanging in maybe just by a thread buy i am hanging on tight I know God will provide

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Yes contactors will do the work - it will be one story with full basement new (color with be all cream or very light yellow with white trim verse old will be minus all my deceased husbands brick work & stone fireplace was one story and attic unuseable mostly crawl space. its been a bummer to give up my dream of restoring - but would cost as much as to demolish & rebuild maybe more. Now just for the bank to get their ball rolling - as said putting up the 64.5 and if have too the 5.3A and the new house I will sell my soul to the devil to get out of here by winter.

He does not seem to have trouble sleeping so far - he did admit to the dr they do hurt at time. time will tell

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@reibur1951

Yes contactors will do the work - it will be one story with full basement new (color with be all cream or very light yellow with white trim verse old will be minus all my deceased husbands brick work & stone fireplace was one story and attic unuseable mostly crawl space. its been a bummer to give up my dream of restoring - but would cost as much as to demolish & rebuild maybe more. Now just for the bank to get their ball rolling - as said putting up the 64.5 and if have too the 5.3A and the new house I will sell my soul to the devil to get out of here by winter.

He does not seem to have trouble sleeping so far - he did admit to the dr they do hurt at time. time will tell

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What a lovely floor plan, @reibur1951! I do hope you can get in by winter. I hope that the doctors find a way to reduce your friend's lumps and so that he can sleep better.

Has anyone mentioned the possibility of palliative care for your friend? It is not the same as hospice care, but it offers pain management to people with serious illnesses. Here is some information about palliative care from Mayo's website, https://www.mayoclinic.org/tests-procedures/palliative-care/in-depth/palliative-care/art-20047525. With palliative care, you can still have medical treatment (curative treatment) but you also have pain management care added to your treatment.

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Thank you - it fits back on the lot and it actually gives me a full basement - and a better layout than the old house tho I do love it and wish i could of restored it.

he was a high tolerance for pain - the had the anti cruciate ligament replaced several years ago after a bike accident refused to go in when happen but next morning his knee had double/tripled in size I forget how many big syringes of blood they took off it and took nothing for it before and after tho they did give him an addictive pain killer after surgery - he rarely even takes tylenol unless forced.

Time will tell how resilient he is to pain

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@reibur1951

Thank you - it fits back on the lot and it actually gives me a full basement - and a better layout than the old house tho I do love it and wish i could of restored it.

he was a high tolerance for pain - the had the anti cruciate ligament replaced several years ago after a bike accident refused to go in when happen but next morning his knee had double/tripled in size I forget how many big syringes of blood they took off it and took nothing for it before and after tho they did give him an addictive pain killer after surgery - he rarely even takes tylenol unless forced.

Time will tell how resilient he is to pain

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@reibur1951- You are such an incredible person to do so much for your friend! Replacing the old house will be quite a job but I love the looks of it! Do you have any ideas for landscaping when it's built?

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No not yet - I had to take down the c1960 Maple trees in early Feb the tops were dying out - wanted cut down to roof level but was advised it was a waste of money to take them completely down at least I got the wood out of theme and have used all but the bigger chunks here to date - it was a fight to get firewood this winter (one would come between 9 p.m and 1 2 a.m.) the other week before christmas kept with excuses working for father building a barn - was glad it was not a cold winter tho had to buy firewood from lowes a couple of times to get by - friends brother in law had been cleaning up the 5A. I gave them so went over there several times to gather up a pick-up load)

They are to leave my 1982 Magnolia tree - I want them to leave the white lilac and to the Northwest between the carport and house lot - - the rest are volunteer - 3 catalpa and a walnut - The hostas around the front porch up there i brought from here I might see if can be rescues and placed in a temporary trench I still have plenty out here if not. --- I knew the maples would be coming down eventually - i thought of getting a Sycamore tree if could be found and a Tulip tree - maybe a red maple if enough room between sidewalk and ahd house maybe another couple of magnolias the but the pinker variety - not sure if the front rock retaining wall to keep the dirt in the yard up off the sidewalk will have to go as yet - David built the north part & I laid it over in 1991 and redone it only breaking on of his rocks it was a tongue in cheek @#$!%?? words he built things to last even tho the cement was crumbling - I done the south wall which he promised to do but never got around to the kids and their friends rode their bikes downe it and eroded it puls washed onto the sidewalk

I have peonies, lilies, hostas and some things out here I will take with when the time comes

Some pics of the house as was h first is c. 1970; next 2 c 1958 when David was transforming front proch into brick; others but last are 2006 - have spent $15,000 on getting a new roof base on it with storm guard which has lasted since 2012 - (hired down) the main house(dining, living rms) had original slat/wood shake shingles under it the back was a flat raised in 1980 it was lowered a little and replaced the sheeting on it & storm guard - the siding took off all but the half bricked south wall and the bedroom wall outside that had the slate siding still whole (it was slapped on entirely over the windows took out but a few that had been replaced in 1982... that were cabbaged up from 4=5 feet to tiny ones I done all the inside gutting because the hole for the attic was less than a 12' by 12' hole that even today's teenager could not fit in to see what to see underneath roof looked like - kitchen, dining, living room had dropped ceilings of 2by4's and sheet rock & kitchen had a second of rails in fiberboard

I loose all Davids work bricking and fire place and the 3/4 feet i done around the bottom in 1991.

WHen it goes down it it going to be bitter sweet the family (first & second) has lived in it since Oct 1940... iy only belonged to 3 families that I can document - the Hawks - Hawkins and Burns....

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Update - He has been on gemcitabine Since the last of may - its two treatments every 3 weeks week 1 & 2 and off the 3rd week. It has lessen the smaller tumors except the big one the smaller ones are still red and now he has a new set of small ones just about 2-3 inches under armpit
Talking of putting back on carboplatin with the gemcitabine if he bigger one does not go down- on July 13 He has been doing good on the gemcitabine of course low blood counts, tiredness and loss of appetite at times i think

The house has been a battle - the ag loan did not but did go through he he mailed me that "he and his bosses decided the property was ot enough for the loan" sent me back to the residential officer and she asked what the problem was that he had offered me $160,000,00 (think he made the decision by himself to make it for the total rebuild amount of round figure 254,000.00) I only asked for $164,000,00 as I had $100,000.000 put back for this - plus what I had in savings for living expenses (property taxes, eyeglasses as are due been putting off because of all the B S, vehicle maintenance, lawyer fees for variance/vacante non ue alley as stated in my abstract but he says not legal which has been delayed because of covid-19 restrictions of meetings, The extra $10,000.00 was for a GEnerac generator and incidentals not covered in the re-build estimate (house/property insures, NIPSCO connecting etc.) furniture (I only have 2 chairs, buffets (2); dressers at least 3, and china hutch; storage rental for the piano, cedar chest and some things I could not bring out here to store - full to the gills ... well he called Friday told me now it was only $155,000.00 told me I could do without the generator for now - I told him no as electric goes out often in that are and would need it if friend went on oxygen etc because of his health - also I do not want to have to worry and not having air conditioning - heat etc when whe are in Indy and there is all the possiblity we would have to stay over nigh or several days. He basically told me I had to use my living expense savings for anything extra for the rebuild I think he is so smart he is dumb or he just did not read the paper work I left with him and and forgot the amount I asked for was only $164,000,00 not the total amount of estimate for re-build I told him I would have to make due with the final amount - I am not giving in to his BS almost as if he wants to deter me and I have put in a lot of work cleaning out the house and re-storing the stuff in here plus I got to be in a nice warm place before winter - rentings not an option - buying a house your still into remodeling etc for anything at the $100,000.00 price range -

Going to go sign my life away to the devil on either wed 24th or thursday 25th and then back to Indy on friday for the infusion of friend then July 13 & 14th - because of the 4th of july weekend and dr not being there on the 10th.

Clean-up coming along - slow stockpiling the scrap metal till i can find out prices was told 2' prepared steel was going for $85 a ton last year it was $200 and over no way selling it cheap unless got to.

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I appreciate the update on your friend's cancer journey. How is he doing with all of this? Does he get depressed or does he soldier through it? Please post again in mid-July and let me know of the final med decision.

How frustrating that your land/legal battles continue. So from what you said, I understand that you will sign for the loan this week?

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I go in Wednesday 24th at 11 to sign for the loan. There's not much of a battle left except for cleaning up the 5.3A which seems and un-ending project, been to hot to do much tho I went to the culver house moved rocked to under magnolia tree, along the property lines on the north and south; and pruned back the magnolia tree (all but massacred it) all that's left is piano, cedar chest, a duncan fife dining table and few other things to move to storage shed..

There is a wall oven (friends dad just had to save for something); I latched on to all the loose metal, racks that I could and 2 hot water heaters in basement - i would like to get out for scrap metal maybe he contractor will load at least the oven into my truck = would be asking a bit to much for the hot water heaters.

He don't talk much about way he feels he still rides his bike down and back to Delong roughly 10 miles round trip iti is there now with the heat/humidity. He gets irritable, impatient when you ask him do do something so I just normal do not - do it myself unless its to heavy an I want it done immediately or within a reasonable time frame. . He has been sleeping a lot more too. His memory gets more and more short term ie. you ask him to go to frig for 3-4 items your lucky to get 2 if not only one of them - or ask him where something is and he does not know remember. Example was a fiberglass dray handled shovel that i knew was around here & belonged to his dad asked for almost 2 weeks finally on June 8th I just went bought a new one lo behold he came up with it brought it in here and announced he found "his shovel" just reminded him it was his dads and left it alone.

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Well its been a month since they demolished the house.... the dig for the basement/cement pour has not occurred... timeline was 6 months from start that will push it ito February and maybe March or later... thanks to the loan office he took from April 28th till June 24th would never give hint if would be approved not happy I will be changing banks when this is over and done with thanks to him.... Now for friend

He had been on gemcitabine Since the last of may – its two treatments every 3 weeks week 1 & 2 and off the 3rd week. sometime in between he was put back on carboplatin (was part of the 1st clinical study) with the gemcitabine week 1 and week 2 only the gemcitabine and week 3 off - the tumors on his back continued to grow and new ones popped up smaller ones went away but new smallers ones would appear - the larger one is getting nasty so Monday stopped the chemos -

Seen radiologist today - go back sometime this coming tuesday - will mean at least 10 treatments off weekends and daily travel to Indy - talking of a clinical study but there is no spot open but going to try and push for an opening if not will go with probably just a single chemo Paclitaxel (Taxol) was mentioned

These started erupting in April my first pics are April 26 and the big one has grown larger each set..... He does finall admit they are sore and the big one hurts every time he bumps it or lays on it wrong.

Cleanup out here is still going on keep uncovering crap 5.3A seems like 80 and can't get anyone to go with me to haul in stuff never pulled a trailer - and can not ge the local scrape yard Rochester Iron and Metal to answer questions as to if nee to tear down motors transmissions etc for better $$ my oxygen resource gave me a scrape yard in Elkhart Indiana a distance away but going to try and see if they will come out access and if they will bring dumspter/truck to be loaded

Getting tried, and am frustrated but still hanging in

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@reibur1951- Good morning. You have certainly had your hands full. Are these cancerous blisters? I think that you once said that they were? Are they painful to him? How are you doing?

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