Post kidney transplant issues

Posted by Charlie @ca426, Jun 28, 2019

A little over 4 years post transplant, and the kidney has hydronephrosis ( swelling) , their are going to put a tube through the kidney wall into the collection duct, there’s a name for this which I will not attempt to spell, it relieve’s the pressure in the kidney and they can find the blockage or restriction.

Interested in more discussions like this? Go to the Transplants Support Group.

@lindajo

Thank you for the reply. They took blood on Friday to have his iron checked, haven’t heard back about it. I am his caregiver and I was for his sister also. She was his donor but the day of surgery they did a swap. His sister is doing good. As for me.... I’m a survivor 😊. Thank you for asking.

Jump to this post

@lindajo Glad to hear you are tough! He's blessed to have you.
As a side note the Vitron C had a side effect that should help your hubby's loose stools. Bonus.
Pleae make sure he is drinking enough it ups your blood pressure and flushes toxins out.
Good luch and be good to yourself.

REPLY
@jolinda

@lindajo Glad to hear you are tough! He's blessed to have you.
As a side note the Vitron C had a side effect that should help your hubby's loose stools. Bonus.
Pleae make sure he is drinking enough it ups your blood pressure and flushes toxins out.
Good luch and be good to yourself.

Jump to this post

Thank you.

REPLY
@gaylea1

@lindajo I am 8 months post transplant (liver) and am just starting to feel less lethargic. The first 6 months I was very fatigued and my mood was low. At times I felt no better than my pre transplant self. My last minor surgery (I had 4 post transplant surgeries due to blocked bile ducts) was June 3rd this summer. That set me back a few months but I'm slowly bouncing back. It will take time to start to feel "normal" again. Everyone is different and the amount of time is different person to person.

Jump to this post

Thank you. I know this is hard on my husband. He’s an avid Deer hunter. Season starts next month and he wants to go so bad but he doesn’t have the strength to shoot his gun.😞

REPLY
@lindajo

Thank you. I know this is hard on my husband. He’s an avid Deer hunter. Season starts next month and he wants to go so bad but he doesn’t have the strength to shoot his gun.😞

Jump to this post

Hang in there Hunting season will be a mile stone to shoot for. Like me and golf. Im not sure about kidney but the drs would not let me shoot until at least 6 months.

REPLY
@lindajo

My husband had a kidney transplant July 2nd. He has no energy, all he does is sleep most of the day. He keeps getting diarrhea. The doctors keep changing his meds. His red and white blood counts are low. My question is: is this normal and has anyone else had problems?

Jump to this post

@lindajo Welcome to Mayo Connect. We're glad you found us, and it appears you are getting some good tips here. I was my husband's caregiver for his kidney transplant on 10/1/16. There are so many factors that play in to recovery. Remember, being on dialysis is not cakewalk, and is very hard on a person's body. The transplant surgery itself is a major surgery, and bouncing back after that can be a long road. His transplant team is still evaluating his blood tests and still tweaking medications. Is he telling them of his fatigue, or are you [I went to every follow-up appt and was in the exam room taking notes, making comments]? Are you making notes the intensity, frequency, what he is eating, etc.? Eating healthy is critical, as is getting low-intensity exercise. It was hard to get my husband to get out and walk at first. But he realized he really would feel better if he did. It's a two-edged sword. If you're not active, you feel bad. If you are too active, you will feel bad. Kinda like Goldilocks and the porridge, finding the right combination. Because of his transplant he will have more opportunities for hunting. I hope you will let us know what the doctors say.
Ginger

REPLY
@lindajo

Thank you for the reply. My big concern is that by him laying around all day he’s losing muscle tone. I’ve noticed that he gets out of breath just walking a few feet. I keep telling him that he has to force himself to get up and move around.

Jump to this post

@lindajo, Have you thought about recruiting one of his friends to help with this? maybe a friend might he helpful here. As a patient, I got tired of my husband 'nagging' me, and would be tempted to ignore him ..

REPLY
@jolinda

@lindajo
I would tire very quickly after kidney transplant. Mayo had me take Vitron C which is an over the counter Iron supplement because my hemoglobin was so low which can make your oxygen low. Maybe ask if it is ok for him to take. Once he is stronger physical therapy might help too, it's a tough process to go through everything he has had to endure. Meanwhile how are you doing? Are you resting and taking care of yourself?

Jump to this post

Hi. Boy have we've been going through a lot these past three weeks. My husband has been in the hospital twice. His creatinine went real high, had a sonogram done and they said his ureter had collapsed. They are calling it Hydronephrosis. Is this a normal thing? They have a tube going to it with a bag to catch his urine. All they can tell me is they dont know why it happened.

REPLY
@lindajo

Hi. Boy have we've been going through a lot these past three weeks. My husband has been in the hospital twice. His creatinine went real high, had a sonogram done and they said his ureter had collapsed. They are calling it Hydronephrosis. Is this a normal thing? They have a tube going to it with a bag to catch his urine. All they can tell me is they dont know why it happened.

Jump to this post

@lindajo I had my transplant 8 years ago. About a week or two after the transplant, I got very sick and was readmitted to the hospital. It turns out my ureter had failed. They placed a stent to drain the urine (the kidney was thankfully going strong), which stayed in place for about 3 months so that everything could calm down. I then had a repair where they attached my native ureter to my new kidney. It was quite a rare situation, but a success! 8 tears post and I’m still going strong!
I had a lot of depression during that ordeal and it took me long time to feel good again, but my care team was awesome, as was my family. Everyone’s recovery is different. I remember dragging myself in for labs one morning and in comes this young man, fit as a fiddle, saying he was a week post op! So full of energy and excitement! And then I remembered I’m at least 40 years older and that maybe in my 20s I would have bounded in too. We all do the best we can.
Good luck to your husband and prayers headed your way.

REPLY
@mollyv

@lindajo I had my transplant 8 years ago. About a week or two after the transplant, I got very sick and was readmitted to the hospital. It turns out my ureter had failed. They placed a stent to drain the urine (the kidney was thankfully going strong), which stayed in place for about 3 months so that everything could calm down. I then had a repair where they attached my native ureter to my new kidney. It was quite a rare situation, but a success! 8 tears post and I’m still going strong!
I had a lot of depression during that ordeal and it took me long time to feel good again, but my care team was awesome, as was my family. Everyone’s recovery is different. I remember dragging myself in for labs one morning and in comes this young man, fit as a fiddle, saying he was a week post op! So full of energy and excitement! And then I remembered I’m at least 40 years older and that maybe in my 20s I would have bounded in too. We all do the best we can.
Good luck to your husband and prayers headed your way.

Jump to this post

Thank you for the reply. I know and understand that everybody heals differently. It just gets so frustrating seeing him go through all this. He's not the energetic man he was before the transplant. Our visit Wednesday was exhausting, they drew blood and his magnesium and phosphorous were low so he had to have a 4 hour drip. We are a little over 3 hours one way from the hospital.They took the bag off and clamped it, so far he has been urinating. We have to keep a daily urine count. If he goes 8 hours without urinating then we have to put the bag back on. We go back next Thursday and they might remove the tube to see if the ureter stays open. If not they are talking surgery.
Im glad to hear you are doing good 😊

REPLY
@lindajo

Thank you for the reply. I know and understand that everybody heals differently. It just gets so frustrating seeing him go through all this. He's not the energetic man he was before the transplant. Our visit Wednesday was exhausting, they drew blood and his magnesium and phosphorous were low so he had to have a 4 hour drip. We are a little over 3 hours one way from the hospital.They took the bag off and clamped it, so far he has been urinating. We have to keep a daily urine count. If he goes 8 hours without urinating then we have to put the bag back on. We go back next Thursday and they might remove the tube to see if the ureter stays open. If not they are talking surgery.
Im glad to hear you are doing good 😊

Jump to this post

@lindajo, I have been traveling. I did find this information about hydronephrosis that I want to share here. I apologize for the delay in getting it to you. https://www.kidney.org/atoz/content/hydronephrosis

I hope that he is showing some improvement. Has the tube been removed? What do the doctors say about any future treatment?

REPLY
Please sign in or register to post a reply.