Neuropathy and other strange symptoms

Posted by jola65 @jola65, Jun 15, 2019

I’m going to mayo in a few weeks, but I thoughtI’m I would write about my symptoms here to see if anyone has experienced something similar. I have burning and tingling in my arms and legs. It feels like there is an electric shock running through my body at all times. This has been going on for almost 10 years now, and when it began I also developed vertigo and I’m unsure if that has any relation. I have various food sensitivities, trouble sleeping, brain fog, constipation, and tinnitus. These symptoms all started together, and I’m not sure if they’re all related but it seems as though they are. The pain is nonstop, although it has lessened and worsened on and off over time. If anyone has any similar symptoms or any advice please advise!! Thank you for reading.

Interested in more discussions like this? Go to the Neuropathy Support Group.

In reply to @jakedduck1
Hello: Thank you for give me your opinion which is also important and not uneducated but your right. You wrote: "I get emails every day on Neuropathy, Cancer and Diabetes cures". Would you send some of those emails on Neuropathy cures? If is not an intrusive request. Private message me for my email.
What is your level of pain in scale of 1 to 10?
Good night Jake

REPLY

Those of you who experiment a pain level on 6, that is mine in a crysis (1 to 10 scale). What treatment algorithm have you ever use that stop pain?
Thank you

REPLY

Hi @vradifegari you may have noticed I removed your email from your post. We recommend not sharing personal contact information in a public online forum. We don't want you to get unwanted spam as a result. Instead we recommend using the private message function. However, I would like to point out that by sharing on the forum, your messages benefit many and we can all learn from each other.

REPLY

Good morning:
I hope the day started nicely for you all.

I found this in a German website: https://www.neuro.med.tu-muenchen.de/dfns/uns/e_portrait.html#NP

The current treatment algorithms of neuropathic pain take into consideration (1) to cure the original cause of the pain, (2) to achieve complete or at least partial analgesia by pharmacological and non-pharmacological strategies and (3) to improve pain coping by psychological treatment strategies. Traditionally pharmacological studies have been directed towards a specific disease entity rather than specific signs or symptoms. Management of patients based on their disease state, however, is probably not the most effective way to address specific neuropathic pain signs and symptoms.
Various different pathophysiological mechanisms can coexist in one disease entity in various combinations and may also be present in one single individual. Thus, drug regimens should be targeted towards the underlying mechanism responsible for the observed and reported findings. For example, patients with allodynia would be expected to respond to similar treatment, although the pathogenesis giving rise to it may reflect a multitude of diverse disorders such as diabetic neuropathy, post-herpetic neuralgia, or nerve entrapment. This approach is appropriate since precipitating changes in the nervous system would be expected to be similar for those suffering from allodynia and therefore therapy should likewise be comparable.

Thus it is an important step to establish a future mechanism-based drug therapy of neuropathic pain. If it would be possible to characterize the concert of the distinct mechanisms that operate in one individual patient, an optimal polypharmacotherapy that addresses the specific combination of mechanisms may be established for each patient. This concept is realized in the development of the Neuropathic Pain Data Bank of the DFNS: it defines neuropathic pain symptoms - independent of the etiology - and will then proceed to treat these symptoms with combinations of various substance classes.

My questions: Does any person have tried this "non-pharmacological strategies and (3) to improve pain coping by psychological treatment strategies"?

Have a good day.

REPLY

In reply to Ethan McKonkey @ethanmcconkey
Posted by Ethan McConkey, Moderator @ethanmcconkey, 12 hours ago
I am sorry. I understand. I have started to post with most reagularity because I am feeling better this days and I am reading with calm your links and post in order to evaluate which are -under my limited reality- what can I really do. I am obligated to get better beause I am only child. I am 33 and with my actual treatments I am not able yeat to clean my own home and my liver started to protest. I can cook easy food, and another easy home activities. But I have to function. Go back to work. So I apologize if it seams I post and post, but I am, trying to fix me.
If in my researching I find good info I will post if you are agree.
My best wishes and relief.
Cynthia

REPLY
@vradifegari

Good morning:
I hope the day started nicely for you all.

I found this in a German website: https://www.neuro.med.tu-muenchen.de/dfns/uns/e_portrait.html#NP

The current treatment algorithms of neuropathic pain take into consideration (1) to cure the original cause of the pain, (2) to achieve complete or at least partial analgesia by pharmacological and non-pharmacological strategies and (3) to improve pain coping by psychological treatment strategies. Traditionally pharmacological studies have been directed towards a specific disease entity rather than specific signs or symptoms. Management of patients based on their disease state, however, is probably not the most effective way to address specific neuropathic pain signs and symptoms.
Various different pathophysiological mechanisms can coexist in one disease entity in various combinations and may also be present in one single individual. Thus, drug regimens should be targeted towards the underlying mechanism responsible for the observed and reported findings. For example, patients with allodynia would be expected to respond to similar treatment, although the pathogenesis giving rise to it may reflect a multitude of diverse disorders such as diabetic neuropathy, post-herpetic neuralgia, or nerve entrapment. This approach is appropriate since precipitating changes in the nervous system would be expected to be similar for those suffering from allodynia and therefore therapy should likewise be comparable.

Thus it is an important step to establish a future mechanism-based drug therapy of neuropathic pain. If it would be possible to characterize the concert of the distinct mechanisms that operate in one individual patient, an optimal polypharmacotherapy that addresses the specific combination of mechanisms may be established for each patient. This concept is realized in the development of the Neuropathic Pain Data Bank of the DFNS: it defines neuropathic pain symptoms - independent of the etiology - and will then proceed to treat these symptoms with combinations of various substance classes.

My questions: Does any person have tried this "non-pharmacological strategies and (3) to improve pain coping by psychological treatment strategies"?

Have a good day.

Jump to this post

@vradifegari here are some possible solutions to improve coping with pain by phychological treatment.

Dr. Norman Doidge has an interesting book on neuroplasticity. I started reading it but it was a little deep for me so I passed it on to one of my colleagues. The four or five chapters I was able to get through were pretty informative and interesting on how the brain works with pain signals.

http://www.normandoidge.com/?page_id=1042
Review of the book here: https://www.lifeinslowmotionblog.com/neuroplasticity-and-chronic-pain-a-book-review-of-the-brains-way-of-healing/

Also, Dr. Amit Sood has some good books that might be helpful.
-- https://marketplace.mayoclinic.com/shop/healthy-lifestyle/book/mayo-clinic-stress-management-combo_752700
There is also a lot of useful and informative short videos on his website - https://www.resilientoption.com/

Other members may also have some good suggestions for you.

REPLY
Please sign in or register to post a reply.