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Reflecting on My Childhood Journey with Epilepsy
Epilepsy & Seizures | Last Active: Jul 2, 2019 | Replies (14)Comment receiving replies
@rachelskaug, Good Morning. I want to welcome you to Mayo Connect. I see that you have been a member on Connect for quite a few years and I am happy that you have joined the conversation and are willoing to share your experiences with others who are like you. I invite you to join the Epilepsy & Seizures Group to share more of your experiences.
I am not familiar with epilepsy, however, as a child going thru any medical treatment and especially the numerous surgeries as you have had, I would like to encourage you to share about your experience.
Am I correct to assume that you are a Mayo patient and have visited Mayo? What was it like for you, as a child to be in a hospital? What would you say to a child who is about to undergo a procedure to comfort them?
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I have joined the epilepsy and seizures group for that reason. I haven't been a patient since 1998 at the Mayo Clinic but I did visit there for tests etc. I was very young when I went thru that experience so I don't remember alot of things. At the time I was at the Mayo Clinic in my journey it was another routine process to get tests done that were similar to previously done tests. I would say to a child going thru this process to do as the doctor says because then you will be that much more comfortable in the hospital setting. Ask questions so you are all on the same page. Bring something that is comforting to them such as a stuffed animal or a comfort toy. I liked doing word searches.