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I took part in a clinical trial. Have you?
Just Want to Talk | Last Active: Jul 12, 2019 | Replies (20)Comment receiving replies
That sounds like an overall good experience for you, Erin. Interesting how the study also helped you will your goal of discovering your family medical history and putting some fears to rest.
If I understand the timeline correctly, you became a Mayo patient after the results of the study testing but before myasthenia gravis (MG) was identified or diagnosed, right? Did the results of the study give you the confidence to seek a second opinion?
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That's right. The NIH advised me to speak to a brain surgeon, and that's how I came to Mayo. Seeking a brain surgeon consult.
By then my eye had some ptosis and I was referred to neuro ophthalmology. My MG medication comes from neuro opthamologist.