1. < Epilepsy & Seizures

Having auras and memory issues, yet test results confusing

Posted by Nadn @nadinen, May 27, 2019

I didnt understand my doctor well.. this is the first time something was found with eeg.. i had two before when i was younger..never found anything until now.. also had mri never found anything

I was told to do a new mri
Doctor said dont bother because even if there was something i wont go through with a surgery since epilepsy is considered well controlled

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bruceg | @bruceg | Jun 1, 2019

Does.anyone have any suggestions on dealing with long term memory loss?

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Leonard | @jakedduck1 | Jun 1, 2019
In reply to @bruceg "The Lamotrigine seems to be helping. My memory is the worst effect of my.seizures. It.seems as..." + (show)
@bruceg

The Lamotrigine seems to be helping.
My memory is the worst effect of my.seizures. It.seems as of about half of my life is missing.
I do not remember if I asked my neurologist about the back operation.
It is on my list for my next appointment.

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@bruceg
There is no doubt Seizures and Anticonvulsants definitely take their toll on our memories. Most seizure meds are sodium channel blockers like your med Lamotrigine which are better than the Calcium Channel Blockers which are now understood to cause memory and some brain damage. Anything that affects your cognitive abilities, learning, thinking, perception, visual processing, problem-solving and concentration have a direct affect on memory.
There are so many things that affect memory including our age, nutrition, emotional health and sleep among many other things.
As far as what can be done about helping improve or get memories back I’m not sure.
When I was in rehab last fall I had speech therapy which helped improve my memory, short term, to some degree. Not sure what can be done for long term. Decades of my memory are are gone forever due to Status Seizures causing Retrograde Amnesia. My past might be best forgotten anyway. Doing things that stimulate the brain like crossword puzzles, exercise, social interaction, good sleep habit, good nutrition, reduce stress, laughter, avoid anxiety, depression and stimulating activities certainly can’t hurt.
Jake

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Lisa Lucier | @lisalucier | Jul 3, 2019
In reply to @nadinen "Someone advised me to get a thin cut mri to see the left side more clearly..." + (show)
@nadinen

Someone advised me to get a thin cut mri to see the left side more clearly incase there is something..and get surgery if possible instead of taking medication for life.. what are your opinions..i feel if im well controlled im ok but i hate medication too ..

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Hi, @nadinen - wondering how you are doing and if you and your doctor decided to pursue the thin-cut MRI to see the left side more clearly or possibly proceed with surgery?

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Nadn | @nadinen | Jul 7, 2019

Hi, at the moment i am taking extra tegratol, and i am going to see if that helps, if that doesnt help my simple partials, my doctor is convinced the sensations i am feeling may be due to anxiety and will put me on an anxiety medication

I hope it doesnt get to that point,but anything for these auras and partials to go away.

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