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gncellist (@gncellist)

Hip Spacer is a Nightmare

Bones, Joints & Muscles | Last Active: Aug 31, 2019 | Replies (10)

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@ethanmcconkey

Hi @gncellist and welcome to Connect. the pain you are experiencing must be so frustrating, and sounds awful.

I wanted to share this discussion on mobility with a hip spacer in hopes you can learn from others' experience: https://connect.mayoclinic.org/discussion/what-kind-of-mobility-can-i-expect-with-an-antibiotic-spacer-in-my-hip/?pg=1#chv4-comment-stream-header

In addition, I'd like to introduce you to fellow Connect members, @linjane @izabel and @mzallen as they have experience with hip spacer's and may be able to offer you support.

Back to you @gncellist what are your doctor's telling you at this point?

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Replies to "Hi @gncellist and welcome to Connect. the pain you are experiencing must be so frustrating, and..."

Thank you. My doctors are saying nothing right now – we’re just in a holding pattern until the needle aspiration 2 weeks after the IV antibiotic course is done. And my surgeon says he doesn’t know when the custom joint will be ready; only that it’s being made. MeanwhileI’ve lost my whole summer – no swimming, no cycling, not even walks. AndI’m a cellist who can’t play the cello with the spacer (& is missing out on my summer concert series, of which I missed 2 of 4 concerts due to last year’s emergency surgery for the staph infection. This whole thing has shaken me to the core – surgery has never faxed me, but this terrifies me -all the more because I keep seeing stories of patients who had to have the spacer repeated 2 or more times or took years to have their infection eradicated.