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Mrs. H (@amberheilman)

Too much life to live

Neuropathy | Last Active: May 11, 2019 | Replies (12)

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@amberheilman

Thanks John. I have read your story and that is one reason why I have joined. Myofascial therapy is great! Before becoming a teacher, I was a certified massage therapist and worked at a pt facility for 7 years. I would definitely encourage myofascial release.
Please add me to any group you feel would I would benefit & help others at the same time.
As far as diagnosis & treatments, I was first diagnosed to have nerve damage from surgery. Then painful bladder syndrome. Finally, SFN last week. I have tried gabapentin, which I did not react well to. Lyrica helped the most so far, but i can not function mentally. It is super expensive for a teacher's wages and the long term side effects are scary. I have been trying medical marijuana at night which helps just as much as lyrica with less side effects however, not liking the idea of smoking. I would much rather have natural medicine. Call me a hippie, but i am sceptical of pharmaceutical drugs. My neurologist said he is not going to do any biopsies to make it officially SFN. He said there is no reason to make scars when it is obvious. My concern is the speed of my symptoms. In 5 months the numbness and burning is all over my body. Today…my tongue is numb. My fear is that I am misdiagnosed again or in another year I will be a lump🤣 in a chair.
Sorry, that was icky. They do have some really cool designs for adult diapers

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Replies to "Thanks John. I have read your story and that is one reason why I have joined...."

Like you, I'm afraid of pharmaceutical drugs, too.. I hope you get a diagnosis quickly, but also know that it's so very difficult to do so.. My own problems have snowballed lately and I'm trying hard to find answers and anything to ease my pain and improve my life.. Presently I'm keeping daily records of how a Homeopathic rubbing oil "Frankincense and Myrrh NEUROPATHY" has been helping my Erythromelalgia/Neuropathy feet.. Not a cure all, but has allowed me to be on my feet around home a bit more.. If you're not already keeping a record of what's happening to you, I recommend it.. I'll be taking a copy of mine when I see my doctor on Monday.. hope it makes the picture more clear to him and should save some time explaining what it's like for me on a daily basis.. We have to hang in there and hope for some relief.. Blessings on you and your family..