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My dad has a mass on bladder and kidney not functioning

Cancer | Last Active: Dec 21, 2022 | Replies (260)

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@formydad

Yeah thanks for all the advice all sounds great- dads back home now they’ve isolated the culture and said they know how to treat infection so they sent him home moved his drain deeper and he has to give himself antibiotic shots think through a pic line- he will be following up soon. I will def be trying to et up more info conf. With team 🙂
Thanks for sharing all your experiences i know they are personal but i appreciate your points of view! Thanks for being patient with me sometimes i get so frustrated about the docs not showing up or calling back or waiting so long i feel like i reach out about the same things alot.. anyway im currently getting over some awful stomach bug so i need to keep away from my parents for a few days but ill be-on phone with them 🙂 wanted to wish you all a Happy And Healthy New Year!

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Replies to "Yeah thanks for all the advice all sounds great- dads back home now they’ve isolated the..."

@formydad The medical community has a lot on their plates, and sometimes forgets the human element. Many times in the past, when faced with a "professional" who wasn't, or given a choice that I could not easily decide, I will ask that person, "Is that how you would like your family member to be treated?" or, "If I was your favorite cousin, what would you advise given the information we have?" There are times it draws them up short and has them reconsider their approach.
It's okay to be frustrated, and angry, and sorrowful. Most all of us here have been in those same shoes at least once. We are all here to offer support and the lessons we have learned from our own experiences.
Get better soon from that stomach bug! Give your folks a big hug when you see them next, and Happy New Year to you and yours, also.
Ginger

@formydad I’m so glad that your dad is home. You mentioned that he will give himself antibiotic shots. This is frequently done by a home care nurse. Did the hospital discuss this with you or your parents?
And remember that infection control is extremely important! What information have your parents been given on infection control?