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Hello. I have small fiber peripheral neuropathy throughout my whole body. B12 deficiency. Literally from the top of my head to my toes, but yes, both legs. My calves feel like bricks and my legs feel like cement. They burn, they ache, they are heavy and continue with cold flush sensations among other strange feelings. Lyrica CR has helped the majority of sunburn feeling and pins and needles. I do not have balance issues but, to walk is to be in pain. The more I walk, the more debilitating it gets. I have to walk very slow and gingerly now. So, one could say I'm in control by IF I choose to walk or not. It's a double edged sword...on one hand I'm defiant and so help me...at age 49 as long as I can put one foot in front of the other, I'm walking! I think of the people who can't and the possibility that I may not be able to at all one day. On the other hand I'm creating my own misery. Out of my whole body's neuropathy, I must admit, these legs are really doing me in. Hands also have been one of the bigger challenges. The future scares me but, I try to stay positive and keep actively pursuing treatments. Life has come to a screeching halt and every day I continue to adapt to my "new norm". It sucks for me, my husband and my children.
Trying to keep the glass half full...cheers my friends!
Replies to "Hello. I have small fiber peripheral neuropathy throughout my whole body. B12 deficiency. Literally from the..."
I admire your reality and willingness to keep putting one foot in front of the other. I wish I didn’t relate but I do! This very moment pain is spasms with a electric charge that should bring me to my knees but my knees won’t bend!
I have nothing to offer,no ideas no medical revelation I take solace in reading the journey of others and prayer which often turns to pleading for a some respite.
You keep moving and embracing your newnormal people love you and breathing helps.
Take care
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Hi, have you looked into trying MFR, or Myofascial Release Therapy? After just 1 session I could feel a reduction in the affects of neuropathy in my feet. After my 4th treatment, I can walk for 20-30 minutes, when before it was maybe less than 10 minutes. There are self treatments as well you do at home to help loosen the fascia in between sessions or not. This has really helped me with my attitude for life after a fall down stairs in Paris in 2012.
I also highly recommend the very gentle position of laying on your back and putting your legs up against the wall, like an L. If you are not real flexible, that’s ok, even getting your butt a foot away from the wall with your legs up, will relieve pooling of blood and fluids and drains by gravity. I do it to compliment my MFR treatments. I am a true believer in MFR as I have been a very strong proponent of this therapy as I have tried pretty much everything in the book. This is truly the first therapy where I have felt good for more than a few hrs. Now it’s much longer.
Hope this helps and good luck finding what you are looking for!!