Thanks @ethanmcconkey and @johnbishop , I will take a look at the Neurodegeneration brain iron links that you sent. I've visited the pages in the past but it's been awhile.

I had also tested positive for a gene related to hemachromatosis. It wasn't the PANK2 gene, but a different one which is also rare and hasn't been studied as much.

My thoughts are, if someone has hematomachrosis, it's in one of their organs, like the liver, kidney, etc and they have a pint of blood removed on a frequently scheduled basis or else the organ wont function properly and ultimately in non scientific terms just wont function?

So, with my brain, I saw a hematologist in 2013 and he did testing for the genetic mutation and discovered the gene mutation but my overall ferritin level was low in my body, not high. And the dr said he had never seen anything like it. And added that I will probably end up in a medical journal. Meanwhile...

My questions are can this iron be chelated from my brain? I feel that some of the docs I've seen really don't know the answers to some of my questions and its beyond their expertise, so I've been told "don't worry about it." Obviously. I'm concerned, especially when my MRI report said this is indicative of a neurodegenerative disease.

I'm just so physically tired from this stress and the symptoms of memory issues, fatigue, the pain in both legs, I don't know if its nerve and muscle related...my legs hurt so badly. I'm scheduled for a bone scan next week because I had breast cancer in 2013 and my oncologist wants to rule out metastasis to my bones.

Any thoughts you have are appreciated. Thank you for listening, I guess I'm feeling a little bummed out, lol. Have a great day!

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