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Progressive neuro-degenerative syndrome in primary immunodeficiencyBrain & Nervous System | Last Active: Mar 26, 2019 | Replies (4)
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Replies to "Hi, @steph73 - thanks for sharing about your son's situation. It is understandable you'd want to..."
He receives sub cutaneous infusion of immunoglobulin weekly
Hi he is experiencing symptoms similar to Parkinson’s and dementia. He has a tremor in both hands, balance and co-ordination issues, his speech has deteriorated and has short term memory. We are in the uk and have been advised there’s no treatment as there is no other cases similar. I have requested a consultantation with mayo as need to do something to help him. He only gets treatment weekly for the immune deficiency.