← Return to I'm having multiple odd episodes that are keeping me undiagnosed. Help

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@hopeful33250

I can certainly understand the restrictions made by insurance companies, @johnwes5819. Does Indiana have any medical schools that you could visit?

If not, I would at least research a very experienced endocrinologist that your insurance would cover.

The one clue you have provided that might indicate hyperparathyroidism is the kidney stones.

Once again, going back to the "Sherlock Holmes" comparison, you will need to do some research on your own. In other words, be your own detective in solving this medical mystery you find yourself experiencing.

Here is some information about hyperparathyroidism, https://www.mayoclinic.org/diseases-conditions/hyperparathyroidism/symptoms-causes/syc-20356194. You might also research hyperparathyroidism using "Google Scholar." Read these and see how many symptoms you have that apply to your current situation.

Once you get enough research together, then I recommend that you see a new endocrinologist and take your symptoms and your research and ask for a more thorough work-up. Being your own patient advocate will be your best approach at this time.

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Replies to "I can certainly understand the restrictions made by insurance companies, @johnwes5819. Does Indiana have any medical..."

@hopeful33250 Yes it's very difficult with the insurance restrictions. Indiana has Indiana University but from what I've read they don't operate as Mayo or Cleveland clinic does. https://iuhealth.org/

I've been doing research on my own and I certainly can see how hyperparathyroidism comes to mind. I had calcium and PTH done and those were in range. I will definitely do more research though. Every doctor I've seen says "Your tests are very thorough and well thought out, who's your doctor?" and I always answer "me". because most of the tests were demanded by me sadly I would love to work extensively with an endocrinologist but I've had bad experiences just like with other specialty doctors. Maybe the Mayo Clinic could be a possibility for me someday but financially it's unfeasible for me right now Thank you so much for your advice and thoughts. I really appreciate it all. 🙂