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What's your experience with dialysis? Give & get support here

Posted by Rosemary, Volunteer Mentor @rosemarya, Mar 7, 2019

Dialysis is required if your kidneys don't function adequately on their own. Your doctor will discuss with you the type of dialysis that's best for you. Dialysis treatment is a serious responsibility, You'll need to work closely with your health care team who have experience in managing dialysis. Open communication with your health care team is essential to your overall health.

Fellow patients are a wonderful source of support and practical information because of a shared dialysis experience.
If you are a dialysis patient, or loved one of a patient, what are some things that you have experienced that might be helpful to someone who is new to dialysis? What kind of life adjustments have you had to make? How has it affected your everyday life?

Interested in more discussions like this? Go to the Kidney & Bladder Support Group.

kamama94 | @kamama94 | Sep 30, 2020
In reply to @fiesty76 "@kamama94, After posting the link for a happier brain, I regretted doing it because you are..." + (show)
@fiesty76

@kamama94, After posting the link for a happier brain, I regretted doing it because you are one of the bravest, most positive posters on the forums I read. I found it helpful but would have done better to have posted my response in "just want to talk" or some other forum. You are right, too, as usual. vbg Those principles are much the same as the 12 recovery steps. I just need frequent "reminders" during this prolonged pandemic with its restrictions to work at staying positive. Hugs for your day.

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@fiesty76, please don't regret positive attempts to support me! I treaasure your humor , your ideas, and your help!

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fiesty76 | @fiesty76 | Sep 30, 2020

@kamama94, See, one of the reasons you are such a favorite is because of your gracious understanding! Thank you.

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | Sep 30, 2020
In reply to @fiesty76 "@kamama94, After posting the link for a happier brain, I regretted doing it because you are..." + (show)
@fiesty76

@kamama94, After posting the link for a happier brain, I regretted doing it because you are one of the bravest, most positive posters on the forums I read. I found it helpful but would have done better to have posted my response in "just want to talk" or some other forum. You are right, too, as usual. vbg Those principles are much the same as the 12 recovery steps. I just need frequent "reminders" during this prolonged pandemic with its restrictions to work at staying positive. Hugs for your day.

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@fiesty, We all benefit by sharing. Thank you.

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kamama94 | @kamama94 | Oct 3, 2020

Feeling better since after Wed dialysis. About time! Today's a good day to live.

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kamama94 | @kamama94 | Oct 9, 2020

Back home at last! Had to have 2nd surgery and longer-than-first-anticipated hospital stay but things seem to be working out fairly well. Details later on, stay tuned. Th one closest to hand (fistula) did not work. The one higher up on the arm (graft) is working so far. See Briony's comment in previous post. Looks colorful and scary but not very tender, just a rainbow. Today's a good day to live!
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4 replies
kamama94 | @kamama94 | Oct 9, 2020
In reply to @kamama94 "Back home at last! Had to have 2nd surgery and longer-than-first-anticipated hospital stay but things seem..." + (show)
@kamama94

Back home at last! Had to have 2nd surgery and longer-than-first-anticipated hospital stay but things seem to be working out fairly well. Details later on, stay tuned. Th one closest to hand (fistula) did not work. The one higher up on the arm (graft) is working so far. See Briony's comment in previous post. Looks colorful and scary but not very tender, just a rainbow. Today's a good day to live!

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Ignore the dates on the photos, I never have set the dates right for the camera.

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bustrbrwn22 | @bustrbrwn22 | Oct 9, 2020
In reply to @kamama94 "Back home at last! Had to have 2nd surgery and longer-than-first-anticipated hospital stay but things seem..." + (show)
@kamama94

Back home at last! Had to have 2nd surgery and longer-than-first-anticipated hospital stay but things seem to be working out fairly well. Details later on, stay tuned. Th one closest to hand (fistula) did not work. The one higher up on the arm (graft) is working so far. See Briony's comment in previous post. Looks colorful and scary but not very tender, just a rainbow. Today's a good day to live!

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@kamama94 so glad to hear. Please keep us posted!!

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Mentor
Ginger, Volunteer Mentor | @gingerw | Oct 9, 2020
In reply to @kamama94 "Back home at last! Had to have 2nd surgery and longer-than-first-anticipated hospital stay but things seem..." + (show)
@kamama94

Back home at last! Had to have 2nd surgery and longer-than-first-anticipated hospital stay but things seem to be working out fairly well. Details later on, stay tuned. Th one closest to hand (fistula) did not work. The one higher up on the arm (graft) is working so far. See Briony's comment in previous post. Looks colorful and scary but not very tender, just a rainbow. Today's a good day to live!

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@kamama94 That is sometimes the case, with fistula and grafts. I am glad they caught it in time. How are you feeling today? Have your digestion/gut issues of nausea and dry heaves sorted themselves out, yet?

Rest gentle.
Ginger

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1 reply
kamama94 | @kamama94 | Oct 9, 2020
In reply to @gingerw "@kamama94 That is sometimes the case, with fistula and grafts. I am glad they caught it..." + (show)
@gingerw

@kamama94 That is sometimes the case, with fistula and grafts. I am glad they caught it in time. How are you feeling today? Have your digestion/gut issues of nausea and dry heaves sorted themselves out, yet?

Rest gentle.
Ginger

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@gingerw, blood sugars still wacky, we'll be working on straightening that out, but guts now are hunky-dory - phew! Feeling pretty fair today though probably will crash after dialysis. Naps, here I come - everyone knows you can't sleep well in a hospital.

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