@beanglow I’m glad you have another appointment and 2nd opinion! My sister goes to University of Michigan for her rare autoimmune disease and she really likes the doctors. Maybe I can get her to message you and tell you of her experience, if that’s ok. Dealing with doctors and finding the right one can be tough at times. I wish you the best of luck.
P.S. your replies are getting posted! You hit the ‘mention someone’ box and it goes to the reply box with a little @ symbol. Then you can write in the person’s “name.” Just like I did at the beginning of this message