Connect
Discussion
Comment receiving replies
Replies to "Hello Shifra - Everybody is different, with their own physiology & other medical conditions to consider...."
MAC & Bronchiectasis | Last Active: Jan 9, 2023 | Replies (5)
Comment receiving replies
Hello Shifra - Everybody is different, with their own physiology & other medical conditions to consider. Was the return of MAC diagnosed with multiple sputum specimens, or is this an assumption based on symptoms? I would be sure the MAC showed up in multiple cultures, and that sensitivity tests were conducted before I even considered the meds a second time. There are people on this list (like Terri) who have worked out alternative regimens with their doctors. Make sure you have a pulmonologist and/or infectious disease specialist who is well-versed in MAC on your treatment team. Good luck!
Replies to "Hello Shifra - Everybody is different, with their own physiology & other medical conditions to consider...."
Connect
Hi Sue,
Once again my sputum had been negative for a few sputum test (and then positive and negative again) and now positive. What are your thoughts on these ups and downs? I see my infectious disease doc in Feb and decided I won’t go back on the big 3 again. Obviously it doesn’t work for me and after ototoxicity from Azithro I am done having the “cure” be worse than the disease. Is it common to have positive and negative sputum ad infinitum? Sorry for the frustration seeping out. I just can’t do it for a third time.
Thank you! Carolyn