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shelly63 (@shelly63)

Hi I’m scared for my liver transplant

Transplants | Last Active: Jun 24, 2021 | Replies (17)

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@jolinda

Every transplant candidate has an assigned nurse or social worker, meet with them and ask more questions. I have never heard of giving money to get on a list, you deserve to know the details of where this money is going, hopefully it is a miscommunication. Please keep us posted as you learn more. Best of luck.

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Replies to "Every transplant candidate has an assigned nurse or social worker, meet with them and ask more..."

Hi, when I first looked into being evaluated for LT I talked to a lower level person at a transplant hospital and was told that with the HMO medical insurance I had. They would require up front payment. I found a liver Surgon. The only approved specialist in my plan. He called one of the head liver surgeons at the hospital and did a verbal referral. I recommended finding a liver surgon specialists to refer you for a transplant. I was evaluated at MELD 40 while at Hospital, put on the list , and received a transplant within a week.
Find a specialist that is or was connected to a transplant hospital. As for disability funds. State disability is hard to get.I assume in your case your work did not pay into disability insurance. You are eligible for SSI disability and I recommend meeting with a SSI worker as soon as possible. Ultimately, you will be eligible for Medicare.

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