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elained (@elained)

Five Things I Wish I’d Known Before My Chronic Illness

Neuropathy | Last Active: Apr 27, 2021 | Replies (59)

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@hopeful33250

Great article @elained. Thanks for sharing that. Support groups like Connect are great because we develop a sense of community that understands where we are coming from.

I especially like the point in the article that speaks of how advice givers often don't understand how unhelpful their advice really is.

Did anyone else find something in the article that resonated with them?

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Replies to "Great article @elained. Thanks for sharing that. Support groups like Connect are great because we develop..."

@elained @hopeful33250 thank you for this article. Each point was right on. I have lived with a chronic disease for over 30 years now and have certainly experienced the so-called advice from others. I constantly remind myself and others that each person walks their own path. As such, each person's response and self-care is important, and is important to share. The feeling that you are not alone even if you are walking an individual path is critical in maintaining emotional and mental balance.
Ginger

@hopeful3350. Oh, yes. The part that said you grieve a version of yourself that doesn’t exist anymore. I’m working on finding a new ‘me’ who likes to do the same things, only much slower.

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