First let me say I am so sorry you are going through this. I certainly can relate. I have been dealing with my issues since 2013 with no certain dx. I have been to so many physicians and had ever test you can think of. My frustration is the physicians not talking with each other. Ever time I have an appt. I feel I am provided the updated information. My husband states, ever appt. is like the first. Coordination of care is poor, and none of them agree with the other.
I have been off work since February 2017. I am a Nurse by trade. It is driving me nuts being at home. I just want someone to fix this or tell me what it is and what to expect and I could digest and move on.