Hi Ethan! Thanks for responding!! I've been fighting MAC for many years, took the triple drug therapy 2014-2016 until vision changes. Probably Rifampin..I was in very bad shape by then. Thankfully my vision is mostly back to normal for me..I've been on and off Clarithromycin for the last few years to hold things at bay but I've been pretty bad since last fall. I do not have a lot of support here with my Doc's. My Pulmonologist is always booked up, I had an ID Doc but he stopped seeing patients in private practice..just works in the Hospital. My Primary is great but does not want to deal with the lung issue. I had a CT scan a week ago Tuesday and no one has even read it completely!!!!

I was happy to find this group and last week saw someone recommend a Doc at Emory in Atlanta. I live in Birmingham AL...not far..and my Daughter lives in Atlanta so I go there often. As of now my records are going there to Dr. Swenson, and they are trying to get me in as quickly as possible...because normal scheduling would put me in mid-August!!

I dread going back on the triple cocktail!! I know there are not many other options. That's why I'm looking for experiences with Amikacin..because that may be what's left to take. I can not take any fluoroquinolones...almost died from those!! It seems that not many people have taken it????

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