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caseyk (@caseyk)

Flank pain from PKD

Kidney & Bladder | Last Active: Apr 30 5:42am | Replies (13)

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@caseyk

I'm not to that point yet. My dad had PKD and he passed from a heart attack in 2001 so I don't have anyone to talk to who has been in this situation. Both my girls 25 and 29 also have PKD so I feel I need to be a good role model and get more informed. I have a new nephrologist that I see in February so I have a lot of questions to ask.

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Replies to "I'm not to that point yet. My dad had PKD and he passed from a heart..."

I remember how scary it was going through the process, but you are not alone…we are here as a whole community of people to support you. I'm sorry to hear that your daughter's have PKD too, t might be helpful to bring them with you to your appointment so they can learn new information at the same time. Do you have a list of questions ready for your new Dr?