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caseyk (@caseyk)

Flank pain from PKD

Kidney & Bladder | Last Active: Apr 30 5:42am | Replies (13)

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@jolinda

Hi @caseyk
I am sorry to hear you are suffering, I have heard of lots of PKD patients having similar pain.
I had PKD too but was able to have my giant old kidneys removed at the same time as my transplant at Mayo Clinic in Rochester (you can see my posts on it under Transplant). Because PKD kidneys continue to grow in size this may be a good option for you too, it may be a solution to your pain.
Good luck and I hope you find relief soon,
Jolinda

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Replies to "Hi @caseyk I am sorry to hear you are suffering, I have heard of lots of..."

Thank you for your reply. Most people say you only get back pain from kidneys and I don't want to change my Crohns meds if the pain is fron my cysts. How far along were you when you started experiencing cyst pain on a regular basis?