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pamclark (@pamclark)

ABI, Cough Syncope and Seizures

Brain & Nervous System | Last Active: Jan 27, 2019 | Replies (11)

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@pamclark

Description of event:
He starts to cough, a short sound.
Goes beet red in a split second.
Face wrinkles up.
Shoulders hunch.
Eyes roll up and to the right.
Tongue sticks out a bit.
Jaws clamp down.
Michael stops breathing and passes out.
(One time recently, for the first time, I saw his eyes track partly back leftward.)
The unconscious period used to last a second (in 2012 approximately) but now lasts for much longer, up to ten or more seconds.
Comes to utterly disoriented. Takes a while to come fully to consciousness. Feels tired.
Michael Has Fallen and had numerous bruises.
Now he lives on the couch, afraid to go out.
No one has been able to help us. I have only part of several events on video, because the first part happens quickly and I am trying to help Michael, who is passing out in extreme distress.
Additional: sometimes he will also shout, or make some sort of sound.

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Replies to "Description of event: He starts to cough, a short sound. Goes beet red in a split..."

It can be difficult to differentiate between fainting and seizures since it’s possible to faint then have a seizure and vs versa. How frequent are these episodes? Does or did he have a stroke, blood sugar problems, liver or kidney failure, high or low blood pressure, diabetes or a serious infection (Meningitis?
In my uneducated opinion although it sounds like seizure activity to me I’m wondering if it’s caused by blood pressure problems or heart issues causing hypoxia which may initiate seizure activity. Because of the duration time I’m wondering if they are Absence seizures. Absences don’t usually last over 15 seconds.
When he collapses does he shake or jerk any part of his body or just lie still? Does he sleep after the episode? In the very beginning does he have a blank stare and doesn’t respond? I know this can happen very quickly and be easily missed. Has a Neurologist seen the video? Is he taking any Anti-epilepsy drugs? If so has the frequency of episodes decreased? Have you been to an Epilepsy Center to see an Epileptologist?
Has he had an EEG & MRI? If he did I assume they were normal which isn’t unusual with a seizure disorder. Has he been given a diagnosis? You mention “sometimes he will also shout, or make some sort of sound.” I’m thinking the sound you hear might be the “Epilepsy cry” which happens when the chest muscles contract and air passes by the vocal cords causing the cry. It’s an involuntary response and not indicative of pain or discomfort. How is Michaels memory after these episodes?
I didn’t mean to make this post into an inquisition but that’s what it’s turning into.
I hope Michael gets these episodes properly diagnosed and is feeling better soon.
Jake

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