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holly56 (@holly56)

Embryonal Brain tumor

Brain Tumor | Last Active: Apr 1, 2019 | Replies (10)

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@colleenyoung

Hi @holly56, it's time for me and @cads to check in again. How has radiation been going? How are YOU?

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Replies to "Hi @holly56, it's time for me and @cads to check in again. How has radiation been..."

Derek has made it through 6 weeks of brain and spine radiation and he has come so far and his personality is coming back and is eating so well! This was on top of a shunt and a revision of the shunt surgery in addition to a temporary feeding tube which helped him tremendously. Received amazing news last night. 🙏🏻🙏🏻Wakemed hospital has a bed available on Wednesday on their neuro inpatient rehab and Derek’s insurance has approved it. Duke Docs will give Derek the Avastin infusion today which they feel will continue to help him feel better and kill off any remaining tumors. That will need to be done here at Duke every 2-4 weeks and not sure for how long and how we monitor for any new tumor growth yet. His tumor was is a Glioblastoma and Embryonal mix, has anyone heard of other people having this type of brain tumor? OT PT has been able to get him from bed to recliner for a few hours the last couple days🙏🏻 Derek said he is ready to go and let’s do this 🙏🏻🙏🏻 He has been in hospital ever since his first brain surgery, 72 days ago. Through Derek’s amazing strength and perseverance, along with the medical expertise and loving care, and the rallying of so many kind thoughts and powerful praying from around the world, Derek is one step closer to coming home 🏡 So much uncertainty yet are blessed we have him and hope 🙏🏻