Our daughter was diagnosed with a rare (Craniopharyngioma) brain tumor at 27 yrs, and is post craniotomy (4yrs) and Proton Beam radiation.
As grateful as we are for the excellent care and treatment she’s received since diagnosis, it’s not easy seeing your child, regardless of age, go through the changes and loss of dreams due to brain tumor. In fact, it sucks!
I’m glad you found this Connection. If you live in MN, the Brains Together For A Cure support group for patients and caregivers meets monthly at Hope Lodge in Rochester. It’s a great group of welcoming, experienced people and physicians.