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holly56 (@holly56)

Embryonal Brain tumor

Brain Tumor | Last Active: Apr 1, 2019 | Replies (10)

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@colleenyoung

hi @holly56 and welcome to Connect. It is such a challenge to find others with rare tumors, such as embryonal tumors.

I'd like to introduce you to @aworriedmom @dgruk @lmp1 and @csaylor who is are parents of adult children living with brain tumors. They know first-hand what it is like to watch a loved one and the family go through such a difficult time.

Holly, did your son live with you at the time of diagnosis? Does he live with or near you now?

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Replies to "hi @holly56 and welcome to Connect. It is such a challenge to find others with rare..."

Thank you Colleen for reaching out and connecting me to others. My son has been in the hospital since diagnosed on December 12th, 2018. He had just finished 9 years of service in Army in June and was looking forward to his next chapter. He loves music and enrolled in college with GI bill on 1/7. So he was living with us during the transition and then his life was suddenly turned upside down. We live in NC and he is at Duke Brain Tumor Center.