Copd, pulmonary fibrosis, mac bacterial infection and honeycomb lung

Posted by tmmmrlts @tmmmrlts, Jan 7, 2019

My husband has been diagnosed with all four of these and I just want to understand more about what is to be expected. And what I can do to help.

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@tmmmrlts- Good morning. I'm glad that he is still getting up. He doesn't need pneumonia at this point. Is he in pain? Is he breathing ok? Warm weather will be here soon!

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@merpreb yes he is in pain he has back and neck problems and hurts in his chest more. There is more bad days then good. His pneumonia comes hasn't ever completely went away. They took him off the 2600 antibiotics because he was throwing up all the time. He up his Gerd medicine back to 40 like the other lung dr had it.

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@tmmmrlts- I'm sorry that he is in pain without knowing if his doctors will see him soon. I can't imagine how taxing this is for you. How can I help?

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@merpreb just talking with me is enough
Thank you very much

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@tmmmrlts

@merpreb just talking with me is enough
Thank you very much

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@tmmmrlts- Anytime. This is the place to rant too!

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@merpreb

@tmmmrlts- Anytime. This is the place to rant too!

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They have changed my husbands appointment at Barnes to March 15th instead of May 31st Thank God

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Does anyone have any idea on cleaners that won't bother my husbands breathing. I used to clean with bleach or pinesol but it bothers him to much any more

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@tmmmrlts

Does anyone have any idea on cleaners that won't bother my husbands breathing. I used to clean with bleach or pinesol but it bothers him to much any more

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Maybe he can tolerate tea tree essential oil and vinegar. Also there is a peroxide cleaner that you might be able to use. Look up non toxic cleaners on the internet and perhaps you will find something useful. Best wishes.

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@tmmmrlts

Does anyone have any idea on cleaners that won't bother my husbands breathing. I used to clean with bleach or pinesol but it bothers him to much any more

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@tmmmrlts Here is a website that talks about non toxic cleaning with safer common ingredients like dish soap, baking soda, vinegar, hydrogen peroxide, etc. I have asthma and I'm triggered by fragrances and chemicals. Bleach and Pinesol bother me too. We don't really need special cleaning products full of chemicals.

https://learn.eartheasy.com/guides/non-toxic-home-cleaning/
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@tmmmrlts

Does anyone have any idea on cleaners that won't bother my husbands breathing. I used to clean with bleach or pinesol but it bothers him to much any more

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@timmmrlss- I think that you can find a vast amount of unscented and natural products on-line. Perhaps your whole food or specialty natural food market will let you smell some of them!

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