Copd, pulmonary fibrosis, mac bacterial infection and honeycomb lung

Posted by tmmmrlts @tmmmrlts, Jan 7, 2019

My husband has been diagnosed with all four of these and I just want to understand more about what is to be expected. And what I can do to help.

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Merry, Alumni Mentor | @merpreb | Feb 16, 2019

In reply to @tmmmrlts "We still haven't heard from Barnes." + (show)

@tmmmrlts- How are things going? Do you think that a call from you would expedite matters any?

tmmmrlts | @tmmmrlts | Feb 24, 2019

In reply to @merpreb "@tmmmrlts- How are things going? Do you think that a call from you would expedite matters..." + (show)

I talked to his lung dr
Friday I was just calling to ask him a question. I told him when the appt. Was and he said no, no, no that won't work he needs to be seen now. So he's calling. And going to call us back Monday.

tmmmrlts | @tmmmrlts | Feb 24, 2019

In reply to @tmmmrlts "I talked to his lung dr Friday I was just calling to ask him a question...." + (show)

Right now the appt is set for may 31st and if they leave it that way. He doesn't think he will make it.

Merry, Alumni Mentor | @merpreb | Feb 25, 2019

In reply to @tmmmrlts "Right now the appt is set for may 31st and if they leave it that way...." + (show)

@tmmmrlts- That's just awful that the doctors who scheduled him didn't see the urgency of your husband's condition. I hope that you will keep the pressure on to get him in sooner! How are you holding up?

baz10 | @baz10 | Feb 25, 2019

In reply to @merpreb "@tmmmrlts- That's just awful that the doctors who scheduled him didn't see the urgency of your..." + (show)

Sometimes I have been told if you need to be seen NOW, to go into the ER, so maybe that is an option for your husband. It is worth a try and then perhaps he can be seen immediately by a lung doc. Best wishes for you and your husband.

tmmmrlts | @tmmmrlts | Feb 26, 2019

In reply to @merpreb "@tmmmrlts- That's just awful that the doctors who scheduled him didn't see the urgency of your..." + (show)

@merpreb I'm doing ok. The lung dr here called up there to try and get him in sooner. I called again today to see if he found out anything. Waiting on a call to see if he could get it earlier.