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tstormes (@tstormes)

Diagnosed with Calciphylaxis

Kidney & Bladder | Last Active: Jan 5, 2019 | Replies (2)

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@JustinMcClanahan

Hello @tstormes, welcome to Connect. I would like to invite @bootsiediabeitc1 to this conversation as they previously talked about having a husband being diagnosed with calciphylaxis. You can see some of that conversation as well, here, https://connect.mayoclinic.org/discussion/seizures-and-calciphlaxes/.

@tstormes, while we wait for some more input, is there a particular question you would like to ask?

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Replies to "Hello @tstormes, welcome to Connect. I would like to invite @bootsiediabeitc1 to this conversation as they..."

@JustinMcClanahan , Thank you for your response, this disease is so complex with the way it progresses and the level of pain is beyond what I could even imagine. My husband has been on the Sodium Thiosulfate since August 2018, he receives this three times a week. The wound is on the left side of his abdominal/chest area, which is slowly getting larger.
I was hoping someone would have some information/treatments that has been tried, that I have not been able to find.

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