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erawl (@erawl)

Big 3 and weight loss

MAC & Bronchiectasis | Last Active: Jan 19, 2019 | Replies (25)

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@sueinmn

Hi migizii, do you see a pulmonologist who is experienced in treating bronchiectasis? What is the colonizing bacteria, and what can you learn about it? If you are coughing up sputum after respiratory therapy, is it clear or yellow/green? Have you had a CT scan to show if there is evidence of infectious damage to your lungs? I would be hesitant to "wait and see" without complete testing and evaluation by a specialist. The waiting advised by my family practitioner left me very ill, weak and fatigued before treatment commenced. My pulmonologist explained that damage from bronchiectasis leaves one susceptible to infection by bugs that normal lungs would be able to overcome, thus he may treat me now, but would not do so for a patient with normal lungs/lung function.

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Replies to "Hi migizii, do you see a pulmonologist who is experienced in treating bronchiectasis? What is the..."

I see a pulmonologist at Mayo in Rochester, MN. I had a CT scan prior to the sputum test and that’s why he ordered the tests. I do cough up sputum (it is usually clear, murky, or slightly blood stroked, but not yellow or green) after respiratory therapy. Information is limited on the internet but here’s what my doctor told me: 2 of the 3 cultures showed mycobacterial current-gordornia polyisoprenivorans, which he called and does not cause disease unless there is an immunodeficiency (which I do not have)……..I am stable as far as no illness is concerned and I am due to see him again in 6 months. I do experience ongoing fatigue and some chest pain (this is minimal). What do you think?

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