Hello, I have PBC with AI Overlap and am trying to learn more about it. I have suffered with this, among other autoimmune diseases, for years now and I have tried from time of diagnosis to educate myself about something I have never heard of. I've learned that Mayo Clinic is the "gold standard" and highest bar that other medical facilities are compared to so I came here to learn more. I read on Mayo Clinic's Patient Care & Health Information > Diseases & Conditions: Liver Disease, that there are several risk factors that may increase your risk of liver disease, including exposure to certain chemicals or toxins. Where does one find information about which certain chemicals and toxins these are and how they affect the liver? Thank you.
Hello, I have PBC with AI Overlap and am trying to learn more about it. I have suffered with this, among other autoimmune diseases, for years now and I have tried from time of diagnosis to educate myself about something I have never heard of. I've learned that Mayo Clinic is the "gold standard" and highest bar that other medical facilities are compared to so I came here to learn more. I read on Mayo Clinic's Patient Care & Health Information > Diseases & Conditions: Liver Disease, that there are several risk factors that may increase your risk of liver disease, including exposure to certain chemicals or toxins. Where does one find information about which certain chemicals and toxins these are and how they affect the liver? Thank you.
Hello @cinnamon215, I know it's difficult dealing with multiple autoimmune diseases and especially when there are a lot of unknowns. I'm really glad to see that you are learning as much as you can about your health condition and being a strong advocate for your health. There is another discussion on Connect that is similar to yours where your post may get much more visibility. I'm tagging our moderator @ethanmcconkey to see if he is able to move your post to the following discussion where you can meet other members discussing Primary Biliary Cholangitis and Autoimmune Hepatitis.
Hi @cinnamon215 you may have noticed that I moved your post to this existing discussion on Primary Biliary Cholangitis, per the request of @johnbishop, in order for you to connect with other members who have similar experiences.
I wanted to introduce you to fellow Connect members, @mahdi123 and @rosemarya as they have had similar experiences to you and may be able to offer you support.
Back to you @cinnamon215 how are your symptoms at this point?
Hello, I have PBC with AI Overlap and am trying to learn more about it. I have suffered with this, among other autoimmune diseases, for years now and I have tried from time of diagnosis to educate myself about something I have never heard of. I've learned that Mayo Clinic is the "gold standard" and highest bar that other medical facilities are compared to so I came here to learn more. I read on Mayo Clinic's Patient Care & Health Information > Diseases & Conditions: Liver Disease, that there are several risk factors that may increase your risk of liver disease, including exposure to certain chemicals or toxins. Where does one find information about which certain chemicals and toxins these are and how they affect the liver? Thank you.
@cinnamon215, I am sorry to hear of your suffering with several autoimmune conditions. I have vitiligo, an autoimmune skin condition, and that is what caused my doctors to look at possibility of my liver disease also being autoimmune related. I was eventually diagnosed with a different disease that affects the bile ducts, Primary Sclerosing Cholangitis(PSC) and received a successful transplant in 2009.
I especially like the information that @johnbishop shared about Common toxins to avoid (— http://loveyourliver.com.au/common-toxins-to-avoid ) because it is directly related to everyday living. It is my understanding that there is research being done to look at the environmental and chemical toxins.
Since you are new to PBC, I want to share this information about Primary Biliary Cholangitis(PBC) from Mayo Clinic Patient Care & Health Information>Diseases & Conditions. It says that, "Primary biliary cholangitis is considered an autoimmune disease, which means your body's immune system is mistakenly attacking healthy cells and tissue. Researchers think a combination of genetic and environmental factors triggers the disease. It usually develops slowly. Medication can slow liver damage, especially if treatment begins early." https://www.mayoclinic.org/diseases-conditions/primary-biliary-cholangitis-pbc/symptoms-causes/syc-20376874
I hope that this helps give you a perspective on this disease.
@cinnamon215, I am sorry to hear of your suffering with several autoimmune conditions. I have vitiligo, an autoimmune skin condition, and that is what caused my doctors to look at possibility of my liver disease also being autoimmune related. I was eventually diagnosed with a different disease that affects the bile ducts, Primary Sclerosing Cholangitis(PSC) and received a successful transplant in 2009.
I especially like the information that @johnbishop shared about Common toxins to avoid (— http://loveyourliver.com.au/common-toxins-to-avoid ) because it is directly related to everyday living. It is my understanding that there is research being done to look at the environmental and chemical toxins.
Since you are new to PBC, I want to share this information about Primary Biliary Cholangitis(PBC) from Mayo Clinic Patient Care & Health Information>Diseases & Conditions. It says that, "Primary biliary cholangitis is considered an autoimmune disease, which means your body's immune system is mistakenly attacking healthy cells and tissue. Researchers think a combination of genetic and environmental factors triggers the disease. It usually develops slowly. Medication can slow liver damage, especially if treatment begins early." https://www.mayoclinic.org/diseases-conditions/primary-biliary-cholangitis-pbc/symptoms-causes/syc-20376874
I hope that this helps give you a perspective on this disease.
Hello @cinnamon215, I know it's difficult dealing with multiple autoimmune diseases and especially when there are a lot of unknowns. I'm really glad to see that you are learning as much as you can about your health condition and being a strong advocate for your health. There is another discussion on Connect that is similar to yours where your post may get much more visibility. I'm tagging our moderator @ethanmcconkey to see if he is able to move your post to the following discussion where you can meet other members discussing Primary Biliary Cholangitis and Autoimmune Hepatitis.
How can a person make an appointment with Mayo for more than just one medical problem. In other words multiple medical problems which work together to bring on the many problems? Does the Mayo only take one medical problem at a time and not consider the whole? Sincerely, peach414144
How can a person make an appointment with Mayo for more than just one medical problem. In other words multiple medical problems which work together to bring on the many problems? Does the Mayo only take one medical problem at a time and not consider the whole? Sincerely, peach414144
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Hello, I have PBC with AI Overlap and am trying to learn more about it. I have suffered with this, among other autoimmune diseases, for years now and I have tried from time of diagnosis to educate myself about something I have never heard of. I've learned that Mayo Clinic is the "gold standard" and highest bar that other medical facilities are compared to so I came here to learn more. I read on Mayo Clinic's Patient Care & Health Information > Diseases & Conditions: Liver Disease, that there are several risk factors that may increase your risk of liver disease, including exposure to certain chemicals or toxins. Where does one find information about which certain chemicals and toxins these are and how they affect the liver? Thank you.
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3 ReactionsHello @cinnamon215, I know it's difficult dealing with multiple autoimmune diseases and especially when there are a lot of unknowns. I'm really glad to see that you are learning as much as you can about your health condition and being a strong advocate for your health. There is another discussion on Connect that is similar to yours where your post may get much more visibility. I'm tagging our moderator @ethanmcconkey to see if he is able to move your post to the following discussion where you can meet other members discussing Primary Biliary Cholangitis and Autoimmune Hepatitis.
> Groups > Transplants > Primary Biliary Cholangitis and Autoimmune Hepatitis
-- https://connect.mayoclinic.org/discussion/primay-biliary-cholagitis-and-autoimmune-hepattitis/
Here are a few links that may help answer your question - which chemicals and toxins affect the liver.
NIH - Toxic hepatitis in occupational exposure to solvents
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3374978/
Industrial Chemicals Associated with Toxic Hepatitis
-- https://www.haz-map.com/heptox1.htm
Common toxins to avoid
-- http://loveyourliver.com.au/common-toxins-to-avoid
Do you think you may have been exposed to any hazardous chemicals or toxins?
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2 ReactionsHi @cinnamon215 you may have noticed that I moved your post to this existing discussion on Primary Biliary Cholangitis, per the request of @johnbishop, in order for you to connect with other members who have similar experiences.
I wanted to introduce you to fellow Connect members, @mahdi123 and @rosemarya as they have had similar experiences to you and may be able to offer you support.
Back to you @cinnamon215 how are your symptoms at this point?
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Helpful -
Hug
3 Reactions@cinnamon215, I am sorry to hear of your suffering with several autoimmune conditions. I have vitiligo, an autoimmune skin condition, and that is what caused my doctors to look at possibility of my liver disease also being autoimmune related. I was eventually diagnosed with a different disease that affects the bile ducts, Primary Sclerosing Cholangitis(PSC) and received a successful transplant in 2009.
I especially like the information that @johnbishop shared about Common toxins to avoid (— http://loveyourliver.com.au/common-toxins-to-avoid ) because it is directly related to everyday living. It is my understanding that there is research being done to look at the environmental and chemical toxins.
Since you are new to PBC, I want to share this information about Primary Biliary Cholangitis(PBC) from Mayo Clinic Patient Care & Health Information>Diseases & Conditions. It says that, "Primary biliary cholangitis is considered an autoimmune disease, which means your body's immune system is mistakenly attacking healthy cells and tissue. Researchers think a combination of genetic and environmental factors triggers the disease. It usually develops slowly. Medication can slow liver damage, especially if treatment begins early."
https://www.mayoclinic.org/diseases-conditions/primary-biliary-cholangitis-pbc/symptoms-causes/syc-20376874
I hope that this helps give you a perspective on this disease.
How are you feeling? How can I help you?
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2 ReactionsThanks for sharing important information
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2 Reactions@johnbishop
How can a person make an appointment with Mayo for more than just one medical problem. In other words multiple medical problems which work together to bring on the many problems? Does the Mayo only take one medical problem at a time and not consider the whole? Sincerely, peach414144
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1 ReactionGood morning, @peach414144. I found a link that will address that question, and I want to share it with you. Appointments FAQ https://www.mayoclinic.org/appointments/faq
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1 ReactionThank you both. Very informative information. I do appreciate. Peach
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1 Reaction@mahdi123, I am happy that you found some helpful information that was posted here. How are you feeling?