I appreciate you sharing additional information, @markbrinkley. I have had three very small NETs in the duodenal bulb. The first one was just .9 cm, the second was .3 and the last one was also small but I don't require the dimensions. I take it from the list of tests that you have never had a 68Ga DOTATATE Positron Emission Tomography (PET), which is the newest diagnostic tool for diagnosing NETs. Here is a link regarding this scan, https://connect.mayoclinic.org/discussion/68ga-dotatate-positron-emission-tomography-pet-now-at-mayo-clinic/. Also, a serotonin blood test is often used.

I hope that another NET patient at Mayo will respond to your request about the procedures at Mayo for a new NET patient, but until then I trust that you will have a good appointment and find answers that you need on the 17th.

I would like to hear from you when you see the Mayo staff. Will you post again?

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